A systematic literature review of attitudes towards secondary use and sharing of health administrative and clinical trial data: a focus on consent

E Hutchings, M Loomes, P Butow, FM Boyle - Systematic Reviews, 2021 - Springer
Background We aimed to synthesise data on issues related to stakeholder perceptions of
consent for the use of secondary data. To better understand the current literature available …

[PDF][PDF] Integrating electronic health records systems across borders: Technical challenges and policy solutions

GT Igwama, JA Olaboye, CC Maha… - International Medical …, 2024 - researchgate.net
This paper explores the challenges and solutions associated with integrating Electronic
Health Records (EHR) systems across borders. Key challenges include interoperability …

Research integrity in clinical trials: innocent errors and spin versus scientific misconduct

M Núñez-Núñez, JC Andrews, M Fawzy… - Current Opinion in …, 2022 - journals.lww.com
Unintentional errors and spin in research are not uncommon as training in design and
conduct of clinical trials is not part of health education for medical and allied health …

Implementation science and practice-oriented research: Convergence and complementarity

SJ Youn, JF Boswell, S Douglas, BA Harris… - … and Policy in Mental …, 2024 - Springer
Implementation science is the scientific study of methods to promote the uptake of research
findings and other evidence-based practices in routine care, with the goal of improving the …

My real avatar has a doctor appointment in the Wepital: A system for persistent, efficient, and ubiquitous medical care

FM Zahedi, H Zhao, P Sanvanson, N Walia… - Information & …, 2022 - Elsevier
COVID-19 created a great deal of personal, social, and economic anxiety in the USA and
across the globe and exposed the inadequacy of traditional medical systems in handling …

Public preference on sharing health data to inform research, health policy and clinical practice in Australia: A stated preference experiment

RJ Varhol, R Norman, S Randall, C Man Ying Lee… - Plos one, 2023 - journals.plos.org
Objective To investigate public willingness to share sensitive health information for research,
health policy and clinical practice. Methods A total of 1,003 Australian respondents …

Digital health and precision prevention: shifting from disease-centred care to consumer-centred health

OJ Canfell, R Littlewood, A Burton-Jones… - Australian Health …, 2021 - CSIRO Publishing
Digital disruption and transformation of health care is occurring rapidly. Concurrently, a
global syndemic of preventable chronic disease is crippling healthcare systems and …

[HTML][HTML] CASIDE: a data model for interoperable cancer survivorship information based on FHIR

L González-Castro, VM Cal-González, G Del Fiol… - Journal of biomedical …, 2021 - Elsevier
Cancer survivorship has traditionally received little research attention although it is
associated with a variety of long-term consequences and also many other comorbidities …

[HTML][HTML] Trust and health information exchanges: Qualitative analysis of the intent to share personal health information

J Busch-Casler, M Radic - Journal of Medical Internet Research, 2023 - jmir.org
Background Digital health has the potential to improve the quality of care, reduce health
care costs, and increase patient satisfaction. Patient acceptance and consent are a …

Public comprehension of privacy protections applied to health data shared for research: An Australian cross-sectional study

A Corman, R Canaway, C Culnane… - International Journal of …, 2022 - Elsevier
Introduction Sharing of health data for secondary uses such as research and public policy
development is common. There are many potential benefits, but also risks if information …