Development and implementation of the AIDA international registry for patients with VEXAS syndrome

A Vitale, V Caggiano, F Della Casa… - Frontiers in …, 2022 - frontiersin.org
Objective The aim of this paper is to present the AutoInflammatory Disease Alliance (AIDA)
international Registry dedicated to Vacuoles, E1 enzyme, X-linked, Autoinflammatory …

The autoinflammatory diseases alliance registry of monogenic autoinflammatory diseases

C Gaggiano, A Vitale, A Tufan, G Ragab… - Frontiers in …, 2022 - frontiersin.org
Objective The present manuscript aims to describe an international, electronic-based, user-
friendly and interoperable patient registry for monogenic autoinflammatory diseases …

Development and implementation of the AIDA international registry for patients with undifferentiated systemic autoinflammatory diseases

F Della Casa, A Vitale, G Lopalco, P Ruscitti… - Frontiers in …, 2022 - frontiersin.org
Objective This paper points out the design, development and deployment of the
AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to pediatric and …

Development and implementation of the AIDA International Registry for patients with Periodic Fever, Aphthous stomatitis, Pharyngitis, and cervical Adenitis syndrome

F Della Casa, A Vitale, M Cattalini, F La Torre… - Frontiers in …, 2022 - frontiersin.org
Objective Aim of this paper is to illustrate the methodology, design, and development of the
AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to patients with …

Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome

J Sota, A Vitale, E Więsik-Szewczyk, M Frassi… - Frontiers in …, 2022 - frontiersin.org
Objective The present paper describes the design, development, and implementation of the
AutoInflammatory Disease Alliance (AIDA) International Registry specifically dedicated to …