CBTRUS statistical report: pediatric brain tumor foundation childhood and adolescent primary brain and other central nervous system tumors diagnosed in the United …

QT Ostrom, M Price, K Ryan, J Edelson, C Neff… - Neuro …, 2022 - academic.oup.com
Abstract The CBTRUS Statistical Report: Pediatric Brain Tumor Foundation Childhood and
Adolescent Primary Brain and Other Central Nervous System Tumors Diagnosed in the …

Long‐term issues and supportive care needs of adolescent and young adult childhood brain tumour survivors and their caregivers: a systematic review

E Nicklin, G Velikova, C Hulme… - Psycho …, 2019 - Wiley Online Library
Objective Long‐term issues following diagnosis and treatment of a childhood brain tumour
often become apparent as the survivor enters adolescence and young adulthood. Their …

Tracing the use of the family management framework and measure: A scoping review

KA Knafl, JA Deatrick, AM Gallo… - Journal of Family …, 2021 - journals.sagepub.com
This article reports the results of a scoping review of research applications of the Family
Management Style Framework (FMSF) and the Family Management Measure (FaMM). We …

Experiences of individuals with acquired brain injury and their families interacting with community services: a systematic scoping review

A Norman, V Curro, M Holloway… - Disability and …, 2023 - Taylor & Francis
Purpose This scoping review aims to (1) synthesise the research findings on the
experiences of individuals with acquired brain injuries, and their families, when interacting …

Patterns of family management for adolescent and young adult brain tumor survivors.

JA Deatrick, LP Barakat, GJ Knafl… - Journal of Family …, 2018 - psycnet.apa.org
Little is known about how families systemically incorporate the work of caring for adolescent
and young adult (AYA) survivors of childhood brain tumors who often remain dependent on …

A qualitative study of adolescent cancer survivors perspectives on social support from healthy peers–A RESPECT study

MV Ingersgaard, MK Fridh… - Journal of Advanced …, 2021 - Wiley Online Library
Background Adolescents' psychosocial development is generally influenced by their peers.
Those facing hospital‐based cancer treatment are particularly challenged as they are …

Families' experiences of child and adolescent brain tumor: a systematic review and synthesis of qualitative research

K Young, A Bowers, N Bradford - Psycho‐Oncology, 2021 - Wiley Online Library
Objectives Brain tumors are the most common and fatal of all solid tumors for children and
adolescents; those who survive live with long‐term physical and emotional consequences …

Emerging and ongoing survivorship challenges among childhood cancer survivors and providing risk-based focused follow-up care

L Bashore, W Hobbie - Seminars in Oncology Nursing, 2021 - Elsevier
Objectives To provide a summary of the emerging and ongoing survivorship challenges
facing childhood, adolescent, and young adult cancer survivors and their families. Data …

Long-term survivors of childhood brain tumors: impact on general health and quality of life

P Gupta, R Jalali - Current neurology and neuroscience reports, 2017 - Springer
Abstract Purpose of Review We review and summarize the key issues affecting general
health and quality of life (QOL) of pediatric long-term survivors of brain tumors. Recent …

CNS tumors in adolescents and young adults: the need for a holistic specialized approach

GI Papageorgiou, ED Razis - JCO oncology practice, 2020 - ascopubs.org
CNS tumors are one of the most common causes of cancer-related death in the 15-to 39-
year-old age group. The management of adolescents and young adults (AYAs) who are …