Previously thought to be a pure motor disease, amyotrophic lateral sclerosis (ALS) is now
established as multisystem neurodegenerative disorder that lies on a continuum with …

Purpose Informal caregivers provide ongoing assistance to a loved one with a health
condition. No studies have compared caregiving intensity and perception of burden across …

Abstract Amyotrophic Lateral Sclerosis (ALS) is a rare neurodegenerative, fatal and currently
incurable disease. People with ALS need support from informal caregivers due to the motor …

Aim To explore and gain knowledge of the experiences and needs among patients with
amyotrophic lateral sclerosis (ALS) of their decision‐making processes whether to choose …

Aims and objectives This study aims to gain a comprehensive understanding of the illness
experience of amyotrophic lateral sclerosis (ALS) patients in China and the meaning they …

Objective: Amyotrophic lateral sclerosis (ALS) affects the life of the family caregiver as well
as the patient. This study aimed to determine the care burden and related factors among …

Objectives This study aims to understand the caregiver burden experienced by the primary
caregivers of patients with amyotrophic lateral sclerosis (ALS), and to explore the factors …

For both patients with amyotrophic lateral sclerosis (ALS) and their next of kin (NOK), the
maintenance of quality of life (QoL) and mental health is particularly important. First studies …

Purpose The purpose of this study was to examine the interrelationship of the caregiver
burden, perceived social support, and quality of life of parents who have children with …

Motor neuron disease (MND) is a progressive neurodegenerative disease. Ideal
management plan in MND includes palliative care initiated from the time of diagnosis. At …