Decision-making regarding place of end-of-life care for children with life-limiting and life-threatening conditions: a systematic integrative review

A Crowe, F Hurley, G Kiernan, H Kerr, Y Corcoran… - BMC Palliative Care, 2025 - Springer
Background Due to medical advancements the number of children living with life-limiting
and life-threatening conditions is rising, meaning more children and their families will …

Competencies for psychology practice in pediatric palliative care

AL Thompson, MR Schaefer… - Journal of pediatric …, 2023 - academic.oup.com
Objective Pediatric psychologists have unique expertise to contribute to the care of youth
with serious illnesses yet are not routinely integrated into pediatric palliative care (PPC) …

Patient-reported outcome measures in children, adolescents, and young adults with palliative care needs—a scoping review

H Holmen, A Winger, SA Steindal, K Riiser, C Castor… - BMC Palliative Care, 2023 - Springer
Background Measuring outcomes facilitates evaluation of palliative services for children,
adolescents, and young adults (CAYAs) with life-limiting and/or life-threatening (LL/LT) …

“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents

D Feifer, EG Broden, JN Baker, J Wolfe… - Journal of Pain and …, 2023 - Elsevier
Context Bereaved parents may have heightened risk for decisional regret; however, little is
known about regret early in bereavement. Objectives We characterized decisional regrets …

Losing a child due to a life-limiting diagnosis—parental well-being and quality of life: nationwide survey

C Lykke, P Sjøgren, O Ekholm - BMJ Supportive & Palliative Care, 2021 - spcare.bmj.com
Objective Losing a child is burdensome with potential long-term impact on the parents' well-
being and quality of life. The aim was to investigate parental well-being and quality of life 3 …

Pain Assessment in Pediatric Patients with Primary Bone Cancer in a Single Site Cohort

FF de Andrade, COS Valete, S Ferman… - Revista Brasileira de …, 2023 - rbc.inca.gov.br
Introdução: A dor é o principal sintoma descrito em pacientes com câncer. Objetivo: Avaliar
a classificação eo manejo da dor em pacientes pediátricos com câncer ósseo primário ao …

[PDF][PDF] Specialiseret palliativ indsats til børn og unge og deres familier

C Lykke, O Ekholm, P Sjøgren - Ugeskr Læger, 2022 - content.ugeskriftet.dk
Den palliative indsats har til formål at fremme livskvaliteten hos patienter med livstruende
sygdom og deres familier. WHO skelner mellem palliativ indsats til børn og unge og palliativ …