The impact of poverty and deprivation at the end of life: a critical review

J Rowley, N Richards, E Carduff… - Palliative Care and …, 2021 - journals.sagepub.com
This critical review interrogates what we know about how poverty and deprivation impact
people at the end of life and what more we need to uncover. While we know that people in …

Models of integration of specialized palliative care with oncology

J Mathews, B Hannon, C Zimmermann - Current treatment options in …, 2021 - Springer
Opinion statement Evidence from randomized controlled trials and meta-analyses has
shown that early integration of specialized palliative care improves symptoms and quality of …

Cohort profile: The ENTWINE iCohort study, a multinational longitudinal web-based study of informal care

S Elayan, E Bei, G Ferraris, O Fisher, M Zarzycki… - Plos one, 2024 - journals.plos.org
Informal care is a key pillar of long-term care provision across Europe and will likely play an
even greater role in the future. Thus, research that enhances our understanding of …

Who cares for the carers? carerhelp: development and evaluation of an online resource to support the wellbeing of those caring for family members at the end of their …

J Tieman, P Hudson, K Thomas, D Saward… - BMC Palliative Care, 2023 - Springer
Background Most people living with a terminal illness and approaching death will need the
assistance of a non-professional carer such as a family member, friend, or neighbour to …

'Beyond the reach of palliative care': a qualitative study of patient and public experiences and anticipation of death and dying

K Pollock, G Caswell, N Turner… - Qualitative Health …, 2024 - journals.sagepub.com
The demands and costs of health care resulting from increasingly ageing populations have
become a major public health issue in the United Kingdom and other industrially developed …

A systematic review of the experiences and support needs of informal caregivers for people who have attempted suicide or experienced suicidal ideation

G Lavers, K Andriessen, K Krysinska - International journal of …, 2022 - mdpi.com
Informal caregivers include family, friends, and significant others who provide important
support for people who have attempted suicide or experienced suicidal ideation. Despite the …

Palliative Care Costs in Different Ambulatory-Based Settings: A Systematic Review

AH Perea-Bello, M Trapero-Bertran, C Dürsteler - PharmacoEconomics, 2024 - Springer
Background Cost-of-illness studies in palliative care are of growing interest in health
economics. There is no standard methodology to capture direct and non-direct healthcare …

Facing death differently: revolutionising our approach to death and grief

L Selman - bmj, 2024 - bmj.com
Despite growing public interest in death, support for end-of-life care and bereavement
remains inadequate. We urgently need a community centred, public health approach to the …

The ideal and the real: Patient and bereaved family caregiver perspectives on the significance of place of death

K Pollock, G Caswell, N Turner, E Wilson - Death Studies, 2024 - Taylor & Francis
Home has become established as the preferred place of death within health policy and
practice in the UK and internationally. However, growing awareness of the structured …

Health-related quality of life: a comparative analysis of caregivers of people with dementia, cancer, COPD/emphysema, and diabetes and noncaregivers, 2015–2018 …

E Secinti, AB Lewson, W Wu, EE Kent… - Annals of Behavioral …, 2021 - academic.oup.com
Background Many informal caregivers experience significant caregiving burden and report
worsening health-related quality of life (HRQoL). Caregiver HRQoL may vary by disease …