C Grady, L Eckstein, B Berkman, D Brock… - The American Journal …, 2015 - Taylor & Francis
Different types of consent are used to obtain human biospecimens for future research. This variation has resulted in confusion regarding what research is permitted, inadvertent …
RAS Salman, E Beller, J Kagan, E Hemminki… - The Lancet, 2014 - thelancet.com
After identification of an important research question and selection of an appropriate study design, waste can arise from the regulation, governance, and management of biomedical …
Connecting the public with biobank research: reciprocity matters | Nature Reviews Genetics Skip to main content Thank you for visiting nature.com. You are using a browser version with limited …
This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for …
CM Simon, J L'heureux, JC Murray, P Winokur… - Genetics in …, 2011 - nature.com
Purpose: Despite important recent work, US public attitudes toward specific biobank consent models are not well understood. Public opinion data can help shape efforts to develop …
Many scholars claim there is a consensus on broad consent for biobanking. We analyzed the literature in PubMed and found no evidence for consensus. Public perception studies …
AK Rahm, M Wrenn, NM Carroll… - Journal of community …, 2013 - Springer
Population-based biobanks are a critical resource for genetic research. It is important to know what potential participants understand about the risks and benefits of providing …
M Ahram, A Othman, M Shahrouri… - European Journal of …, 2014 - nature.com
A diversity of public participation in biobanking is a highlight for the success of biobanks. It was previously reported that only two-thirds of Jordanians expressed interest in biobanking …
While biobanking is expanding globally, the empirical evidence concerning the impact of religion on future healthcare professionals' awareness and willingness to donate …