Selumetinib in children with inoperable plexiform neurofibromas
AM Gross, PL Wolters, E Dombi… - … England Journal of …, 2020 - Mass Medical Soc
Background No approved therapies exist for inoperable plexiform neurofibromas in patients
with neurofibromatosis type 1. Methods We conducted an open-label, phase 2 trial of …
with neurofibromatosis type 1. Methods We conducted an open-label, phase 2 trial of …
A critical evaluation of the content validity of patient-reported outcome measures assessing health-related quality of life in children with cancer: a systematic review
M Rothmund, A Meryk, G Rumpold… - Journal of Patient …, 2023 - Springer
Background With increasing survival rates in pediatric oncology, the need to monitor health-
related quality of life (HRQOL) is becoming even more important. However, available patient …
related quality of life (HRQOL) is becoming even more important. However, available patient …
Agreement between child self-report and caregiver-proxy report for symptoms and functioning of children undergoing cancer treatment
JW Mack, M McFatrich, JS Withycombe… - JAMA …, 2020 - jamanetwork.com
Importance Adult patients are considered the best reporters of their own health-related
quality of life (HRQOL). Self-report in pediatrics has been challenged by a limited array of …
quality of life (HRQOL). Self-report in pediatrics has been challenged by a limited array of …
PROMIS® pediatric self-report scales distinguish subgroups of children within and across six common pediatric chronic health conditions
Purpose To conduct a comparative analysis of eight pediatric self-report scales for ages 8–
17 years from the National Institutes of Health (NIH) Patient Reported Outcomes …
17 years from the National Institutes of Health (NIH) Patient Reported Outcomes …
Matching IRT models to patient-reported outcomes constructs: The graded response and log-logistic models for scaling depression
Item response theory (IRT) model applications extend well beyond cognitive ability testing,
and various patient-reported outcomes (PRO) measures are among the more prominent …
and various patient-reported outcomes (PRO) measures are among the more prominent …
Psychometric properties of the PROMIS® pediatric scales: precision, stability, and comparison of different scoring and administration options
Objectives The objectives of the present study are to investigate the precision of static (fixed-
length) short forms versus computerized adaptive testing (CAT) administration, response …
length) short forms versus computerized adaptive testing (CAT) administration, response …
[HTML][HTML] Chronic pain and high impact chronic pain in children and adolescents: a cross-sectional study
The aims of this study were to: 1) estimate the prevalence of chronic pain (CP) and high
impact chronic pain (HICP) in a community sample of children and adolescents; and 2) …
impact chronic pain (HICP) in a community sample of children and adolescents; and 2) …
PROMIS Pediatric Peer Relationships Scale: development of a peer relationships item bank as part of social health measurement.
Objective: This study's objective was to develop a measure of social health using item
response theory as part of the Patient Reported Outcomes Measurement Information System …
response theory as part of the Patient Reported Outcomes Measurement Information System …
Estimating minimally important difference (MID) in PROMIS pediatric measures using the scale-judgment method
Objective To assess minimally important differences (MIDs) for several pediatric self-report
item banks from the National Institutes of Health Patient-Reported Outcomes Measurement …
item banks from the National Institutes of Health Patient-Reported Outcomes Measurement …
PROMIS pediatric measures in pediatric oncology: valid and clinically feasible indicators of patient‐reported outcomes
PS Hinds, SL Nuss, KS Ruccione… - Pediatric blood & …, 2013 - Wiley Online Library
Background Establishing the ability of children and adolescents with cancer to complete the
NIH‐sponsored PROMIS pediatric measures electronically and the preliminary validity …
NIH‐sponsored PROMIS pediatric measures electronically and the preliminary validity …