Unmet supportive care needs of patients with rare cancer: a systematic review

E de Heus, JM van der Zwan, O Husson… - European journal of …, 2021 - Wiley Online Library
Objective Patients with rare cancers may experience different unmet needs than those with
common cancer. The objective of this systematic review was to (1) investigate unmet …

Psychological outcomes in patients with rare cancers: a systematic review and meta-analysis

CE Low, S Loke, GE Pang, B Sim, VS Yang - Eclinicalmedicine, 2024 - thelancet.com
Background Rare cancers are those that exhibit an incidence of less than six per 100,000 in
a year. On average, the five-year relative survival for patients with rare cancers is worse than …

Cancer-related distress: revisiting the utility of the national comprehensive cancer network distress thermometer problem list in women with gynecologic cancers

PI Jewett, D Teoh, S Petzel, H Lee, A Messelt… - JCO Oncology …, 2020 - ascopubs.org
PURPOSE: The Distress Thermometer (DT) includes a measure of cancer-related distress
and a list of self-reported problems. This study evaluated the utility of the DT problem list in …

Common patient‐reported sources of cancer‐related distress in adults with cancer: A systematic review

JM Stevens, K Montgomery, M Miller… - Cancer …, 2024 - Wiley Online Library
Background Cancer‐related distress (CRD) is widely experienced by people with cancer
and is associated with poor outcomes. CRD screening is a recommended practice; however …

Reproductive concerns and fear of cancer recurrence: a qualitative study of women's experiences of the perinatal period after cancer

RN Vanstone, K Fergus, NNN Ladhani… - BMC Pregnancy and …, 2021 - Springer
Background Young female cancer survivors are at a disproportionate risk of suffering
significant psychological distress following treatment, particularly fears of cancer recurrence …

Rare cancer and return to work: experiences and needs of patients and (health care) professionals

DLT Olischläger, LXY den Boer, E de Heus… - Disability and …, 2023 - Taylor & Francis
Purpose Patients with a rare cancer often face delays in their diagnostic and treatment
trajectory, which may affect their work. In this study, we explored experiences and needs of …

The psychological impact of sarcoma on affected patients

IG Franzoi, A Granieri, MD Sauta… - Psycho …, 2023 - Wiley Online Library
Objective Sarcoma diagnosis and its treatment trajectory may deeply affect the
somatopsychic balance of patients and their caregivers. This systematic review aimed at …

The solitary versus supported experience: Care inequality between rare and common cancer patients

E de Heus, K van de Camp, E Driehuis… - Psycho …, 2023 - Wiley Online Library
Objective Patients with a rare cancer (RC) often have a more complex disease trajectory
than patients with a common cancer. Research involving both patient groups is needed to …

Quality of life in cancer survivorship: Sociodemographic and disease‐related moderators

Y Andreu, P Martínez, A Soto‐Rubio… - European Journal of …, 2022 - Wiley Online Library
Rationale To identify high‐risk survivors in order to provide appropriate care. Purpose To
analyse the quality of life (QOL) of cancer survivors using an instrument designed …

The supportive care needs of regional and remote cancer caregivers

A Stiller, BC Goodwin, F Crawford-Williams, S March… - Current …, 2021 - mdpi.com
Objective: As cancer survival rates continue to increase, so will the demand for care from
family and friends, particularly in more isolated settings. This study aims to examine the …