Background We aimed to synthesise data on issues related to stakeholder perceptions of
consent for the use of secondary data. To better understand the current literature available …

Objectives To ascertain compliance rates with the European Commission's requirement that
all trials on the EU Clinical Trials Register (EUCTR) post results to the registry within 12 …

A systematic literature review of researchers and healthcare professionals' attitudes towards
the secondary use and sharing of health administrative and clinical trial data was conducted …

Objectives We examined major issues associated with sharing of individual clinical trial data
and developed a consensus document on providing access to individual participant data …

The importance of adequate intervention descriptions in minimising research waste and
improving research usability and reproducibility has gained attention in the past few years …

Private companies provide by far the most funding for scientific research and development.
Nevertheless, relatively little attention has been paid to the dynamics of industry‐funded …

Abstract Objective We present the Clinical Trial Knowledge Base, a regularly updated
knowledge base of discrete clinical trial eligibility criteria equipped with a web-based user …

Background It is an ethical and scientific obligation to register each clinical trial, and report
its results, accurately, comprehensively and on time. The WHO recognizes 17 public …

Background: Failure to publish trial results is a prevalent ethical breach with a negative
impact on patient care. Audit is an important tool for quality improvement. We set out to …

Assessment of individuals' job performance, personalized health and psychometric
measures are domains where data-driven ubiquitous computing will have a profound impact …