Pediatric biobanks to enhance clinical and translational research for children

A Cianflone, F Savoia, R Parasole… - European Journal of …, 2023 - Springer
Including children in biomedical research is an argument for continual reflection and
practice refinement from an ethical and legal standpoint. Indeed, as children reach …

An overview of benefits and challenges of rare disease biobanking in Africa, focusing on South Africa

EH Conradie, H Malherbe, CJ Hendriksz… - Biopreservation and …, 2021 - liebertpub.com
The North-West University's Centre for Human Metabolomics (CHM) is in the process of
establishing the first rare disease (RD) biobank in South Africa and Africa. The CHM …

Paediatric biobanking for health: The ethical, legal, and societal landscape

S Casati, B Ellul, MT Mayrhofer, M Lavitrano… - Frontiers in Public …, 2022 - frontiersin.org
Biobanks play a central role in pediatric translational research, which deals primarily with
genetic data from sample-based research. However, participation of children in biobanking …

Determining the state of guidance on pediatric biobanking for researchers, HRECS, and families: Regulatory mapping of international guidance

S Prince, SN Then, KA O'Grady - European Journal of Pediatrics, 2024 - Springer
Biobanking—the storage of human biological samples, including tissue, blood, urine, and
genetic data—raises many ethical, legal, and social issues, including confidentiality and …

Pediatric biorepository participation during the COVID-19 pandemic: predictors of enrollment and biospecimen donation

AM Neilan, A Tyagi, Y Tong, EJ Farkas, MD Burns… - BMC pediatrics, 2022 - Springer
Background Patient-level predictors of enrollment in pediatric biorepositories are poorly
described. Especially in pandemic settings, understanding who is likely to enroll in a …

Governance and public trust: a case study of the rare-pediatric eye cancer biobank

K Flegg, R Noronha, I Ristevski… - Canadian …, 2024 - canadianjournalofophthalmology.ca
Conclusion Biobanks are complex, multifaceted entities which, when well executed and
managed, are a valuable research asset. Establishing not just public trust, but trustworthy …

Cases in Bioethics: Health Research Ethics in Southeast Asia

HP Sathasivam - muse.jhu.edu
Many collections of human biospecimens are available and used worldwide for biomedical
research, including tissue samples from children. These samples are vital for research to …

Biobanking in Paediatrics: A Look from Armenia as a Middle-Income Country

S Sargsyan, M Melkumova - Biobanks in Low-and Middle-Income …, 2022 - Springer
Today we are witnessing significant advances in various fields of medicine. In particular,
many of the recent advances in biomedical research are largely related to advances in …

Biobanking of Specimens from Children

J Ali, N Gopalan, HP Sathasivam - muse.jhu.edu
Many collections of human biospecimens are available and used worldwide for biomedical
research, including tissue samples from children. These samples are vital for research to …