Decision-making in palliative care: patient and family caregiver concordance and discordance—systematic review and narrative synthesis

SM Symmons, K Ryan, SM Aoun… - BMJ supportive & …, 2023 - spcare.bmj.com
Background Decision-making in palliative care usually involves both patients and family
caregivers. However, how concordance and discordance in decision-making manifest and …

A synthesis of knowledge about caregiver decision making finds gaps in support for those who care for aging loved ones

MM Garvelink, PAG Ngangue, R Adekpedjou… - Health …, 2016 - healthaffairs.org
We conducted a mixed-methods knowledge synthesis to assess the effectiveness of
interventions to improve caregivers' involvement in decision making with seniors, and to …

Communication between advanced cancer patients and their family caregivers: relationship with caregiver burden and preparedness for caregiving

AK Otto, D Ketcher, RE Heyman… - Health …, 2021 - Taylor & Francis
Cancer impacts spouse caregivers, especially when couples engage in dyadic coping
around the cancer. Communication is a key factor in this process. Our goals were to …

The decision partner in healthcare decision-making: A concept analysis

TF Gray, MT Nolan, ML Clayman, JA Wenzel - International journal of …, 2019 - Elsevier
Background The decision partner concept emerged to describe someone who contributes to
healthcare decision-making with a patient. There is a need for greater precision and …

Prognostic awareness and communication preferences among caregivers of patients with malignant glioma

AJ Applebaum, K Buda, M Kryza‐Lacombe… - Psycho …, 2018 - Wiley Online Library
Objective Malignant glioma (MG) is a devastating neuro‐oncologic disease with almost
invariably poor prognosis, yet many families facing malignant glioma have poor prognostic …

Knowledge, attitudes and preferences of palliative and end-of-life care among patients with cancer in mainland China: a cross-sectional study

Q Cheng, Y Duan, H Zheng, X Xu, K Khan, J Xie… - BMJ open, 2021 - bmjopen.bmj.com
Objectives This study aimed to investigate the knowledge and attitudes of patients with
cancer of palliative care and their preferences regarding end-of-life care in mainland China …

[HTML][HTML] Accurate prognostic awareness facilitates, whereas better quality of life and more anxiety symptoms hinder end-of-life care discussions: a longitudinal survey …

ST Tang, CH Chen, FH Wen, JS Chen… - Journal of Pain and …, 2018 - Elsevier
Context Terminally ill cancer patients do not engage in end-of-life (EOL) care discussions or
do so only when death is imminent, despite guidelines for EOL care discussions early in …

Promoting improved family caregiver health literacy: evaluation of caregiver communication resources

E Wittenberg, J Goldsmith, B Ferrell… - Psycho …, 2017 - Wiley Online Library
Objectives Family caregivers of cancer patients have a vital role in facilitating and sharing
information about cancer, revealing a need to develop caregiver health literacy skills to …

Role of patients' family members in end-of-life communication: an integrative review

J Pun, JCH Chow, L Fok, KM Cheung - BMJ open, 2023 - bmjopen.bmj.com
Objectives To synthesise empirical findings on the role of family in end-of-life (EOL)
communication and to identify the communicative practices that are essential for EOL …

Understanding nurses' experiences and perceptions of end-of-life care for cancer patients in Korea: a scoping review

MY Jung, AK Matthews - Journal of Palliative Care, 2021 - journals.sagepub.com
Background: Quality end-of-life care for cancer patients is a global health priority, and
nurses are instrumental in providing this care. However, little is known about nurses' …