Parallel journeys of patients with cancer and depression: challenges and opportunities for technology-enabled collaborative care

J Suh, S Williams, JR Fann, J Fogarty… - Proceedings of the …, 2020 - dl.acm.org
Depression is common but under-treated in patients with cancer, despite being a major
modifiable contributor to morbidity and early mortality. Integrating psychosocial care into …

Participatory personal data: An emerging research challenge for the information sciences

K Shilton - Journal of the American Society for Information …, 2012 - Wiley Online Library
Individuals can increasingly collect data about their habits, routines, and environment using
ubiquitous technologies. Running specialized software, personal devices such as phones …

Catalyzing social support for breast cancer patients

MM Skeels, KT Unruh, C Powell, W Pratt - Proceedings of the SIGCHI …, 2010 - dl.acm.org
Social support is a critical, yet underutilized resource when undergoing cancer care.
Underutilization occurs in two conditions:(a) when patients fail to seek out information …

Meeting young adults' social support needs across the health behavior change journey: implications for digital mental health tools

J Meyerhoff, R Kornfield, DC Mohr… - Proceedings of the ACM on …, 2022 - dl.acm.org
In pursuit of mental wellness, many find that behavioral change is necessary. This process
can often be difficult but is facilitated by strong social support. This paper explores the role of …

MyPath: Investigating breast cancer patients' use of personalized health information

M Jacobs, J Johnson, ED Mynatt - Proceedings of the ACM on Human …, 2018 - dl.acm.org
Following a cancer diagnosis, patients must cope with numerous physical, emotional, and
practical challenges. While health information exists to help patients learn how to manage …

Roles in the discussion: an analysis of social support in an online forum for people with dementia

J Johnson, RW Black, GR Hayes - Proceedings of the ACM on Human …, 2020 - dl.acm.org
Social computing provides a variety of challenges and opportunities for people who are
experiencing cognitive decline. Following a recent diagnosis of dementia, older adults …

Comparing health information sharing preferences of cancer patients, doctors, and navigators

ML Jacobs, J Clawson, ED Mynatt - … of the 18th ACM Conference on …, 2015 - dl.acm.org
As technologies such as personal health records and symptom trackers become more
common, we are seeing an increase in patients actively engaging in health tracking …

Baby steps: evaluation of a system to support record-keeping for parents of young children

JA Kientz, RI Arriaga, GD Abowd - … of the sigchi conference on human …, 2009 - dl.acm.org
Parents of young children often want to keep a variety of records on their children's early
years, for the purposes of preservation of memories or at the request of their pediatrician …

Constructing identities through storytelling in diabetes management

L Mamykina, AD Miller, ED Mynatt… - Proceedings of the …, 2010 - dl.acm.org
The continuing epidemics of diabetes and obesity create much need for information
technologies that can help individuals engage in proactive health management. Yet many of …

Care partnerships: toward technology to support teens' participation in their health care

MK Hong, L Wilcox, D Machado, TA Olson… - Proceedings of the …, 2016 - dl.acm.org
Adolescents with complex chronic illnesses, such as cancer and blood disorders, must
partner with family and clinical caregivers to navigate risky procedures with life-altering …