Frameworks for supporting patient and public involvement in research: systematic review and co‐design pilot

T Greenhalgh, L Hinton, T Finlay… - Health …, 2019 - Wiley Online Library
Background Numerous frameworks for supporting, evaluating and reporting patient and
public involvement in research exist. The literature is diverse and theoretically …

Preparing for patient partnership: a scoping review of patient partner engagement and evaluation in research

M Bird, C Ouellette, C Whitmore, L Li, K Nair… - Health …, 2020 - Wiley Online Library
Background Realizing patient partnership in research requires a shift from patient
participation in ancillary roles to engagement as contributing members of research teams …

The dark side of coproduction: do the costs outweigh the benefits for health research?

K Oliver, A Kothari, N Mays - Health research policy and systems, 2019 - Springer
Background Coproduction, a collaborative model of research that includes stakeholders in
the research process, has been widely advocated as a means of facilitating research use …

Evaluating patient and public involvement in research

A Boivin, T Richards, L Forsythe, A Grégoire… - Bmj, 2018 - bmj.com
Research funders increasingly recommend and require patient and public involvement (PPI)
in the design, conduct, and dissemination of health and social care research. 1 2 3 In the …

Identifying evidence of effectiveness in the co-creation of research: a systematic review and meta-analysis of the international healthcare literature

K Halvorsrud, J Kucharska, K Adlington… - Journal of public …, 2021 - academic.oup.com
Background To investigate and address the evidence gap on the effectiveness of co-
creation/production in international health research. Methods An initial systematic search of …

Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis

M Vanstone, C Canfield, C Evans, M Leslie… - Health Research Policy …, 2023 - Springer
Background With the sharp increase in the involvement of patients (including family and
informal caregivers) as active participants, collaborators, advisors and decision-makers in …

Evaluating the “return on patient engagement initiatives” in medicines research and development: a literature review

LE Vat, T Finlay… - Health …, 2020 - Wiley Online Library
Background Showing how engagement adds value for all stakeholders can be an effective
motivator for broader implementation of patient engagement. However, it is unclear what …

How does integrated knowledge translation (IKT) compare to other collaborative research approaches to generating and translating knowledge? Learning from …

T Nguyen, ID Graham, KJ Mrklas, S Bowen… - Health research policy …, 2020 - Springer
Abstract Background Research funders in Canada and abroad have made substantial
investments in supporting collaborative research approaches to generating and translating …

Valuing All Voices: refining a trauma-informed, intersectional and critical reflexive framework for patient engagement in health research using a qualitative descriptive …

P Roche, C Shimmin, S Hickes, M Khan… - Research involvement …, 2020 - Springer
Background Critical stakeholder-identified gaps in current health research engagement
strategies include the exclusion of voices traditionally less heard and a lack of consideration …

Evaluation of research co-design in health: a systematic overview of reviews and development of a framework

S Peters, L Guccione, J Francis, S Best… - Implementation …, 2024 - Springer
Background Co-design with consumers and healthcare professionals is widely used in
applied health research. While this approach appears to be ethically the right thing to do, a …