Variables related to the quality of life of families that have a child with severe to profound intellectual disabilities: A systematic review

N Luitwieler, J Luijkx, M Salavati, CP Van der Schans… - Heliyon, 2021 - cell.com
Background Family quality of life (FQoL) of families that have a child with severe to profound
intellectual disabilities (SPID) is an important and emerging concept, however, related …

Adaptation at the family level in families of individuals with Down syndrome: A scoping review

M Van Riper, B Cosgrove… - Journal of Family …, 2023 - journals.sagepub.com
Down syndrome (DS) is a chromosomal disorder associated with intellectual and physical
disabilities and has historically been viewed by health care providers through a negative …

Parental stress and resilience in autism spectrum disorder and Down syndrome

G Pastor-Cerezuela… - Journal of Family …, 2021 - journals.sagepub.com
The aim of this study was to compare parental stress and resilience in parents of children
with autism spectrum disorder (ASD), Down syndrome (DS), and typical development (TD) …

Social support and post-crisis growth among mothers of children with autism spectrum disorder and mothers of children with down syndrome

R Alon - Research in developmental disabilities, 2019 - Elsevier
Background Raising a child with special needs challenges mothers in complicated ways,
yet, alongside these difficulties, there is evidence for maternal post-crisis growth. Social …

Quality of life and concerns in parent caregivers of adult children diagnosed with intellectual disability: A qualitative study

MI Fernández-Ávalos, MN Pérez-Marfil… - International Journal of …, 2020 - mdpi.com
Background: Previous studies have confirmed that parenting a child diagnosed with an
intellectual disability (ID) can negatively affect the parents' quality of life in several …

Health-related quality of life, anxiety, depression and distress of mothers and fathers of children on Home parenteral nutrition

HA Van Oers, L Haverman, JF Olieman, EG Neelis… - Clinical nutrition, 2019 - Elsevier
Background & aims Parents of children with intestinal failure, dependent on Home
Parenteral Nutrition (HPN), may experience psychosocial problems due to the illness and …

Psychological wellbeing in parents of children with Down syndrome: A systematic review and meta-analysis

TL Rutter, RP Hastings, CA Murray, N Enoch… - Clinical Psychology …, 2024 - Elsevier
We report a review examining the psychological wellbeing of parents of children with Down
syndrome (DS) relative to that of parents of typically developing (TD) children. A systematic …

A comparison of the balance and gait function between children with Down syndrome and typically developing children

HK Jung, EJ Chung, BH Lee - Journal of physical therapy science, 2017 - jstage.jst.go.jp
[Purpose] The purpose of this study was to compare the balance and gait functions of
children with Down syndrome and typically developing children according to age.[Subjects …

Mothers of 0–3‐year‐old children with Down syndrome: Effects on quality of life

G Senses Dinc, E Cop, T Tos, E Sari… - Pediatrics …, 2019 - Wiley Online Library
Background The aim of this study was to assess the quality of life (QoL) of mothers of
children with Down syndrome (DS) and the factors related to it. Methods Seventy‐five DS …

Pain is a family matter: Quality of life in mothers and fathers of youth with chronic pain

JZ Benjamin, C Harbeck‐Weber… - Child: Care, Health and …, 2019 - Wiley Online Library
Background Most research on family impacts of paediatric chronic pain has been conducted
with mothers, and therefore, little is known about fathers' adjustment. However, it is well …