Digital legacy: a systematic literature review

DT Doyle, JR Brubaker - Proceedings of the ACM on Human-Computer …, 2023 - dl.acm.org
To more effectively support the dying and bereaved in end-of-life contexts, over the past two
decades HCI and social computing scholars have sought to understand digital legacy. In this …

Chronic care in a life transition: Challenges and opportunities for artificial intelligence to support young adults with type 1 diabetes moving to university

S James, M Armstrong, Z Abdallah… - Proceedings of the 2023 …, 2023 - dl.acm.org
Self-managing a chronic condition involves adapting management strategies to life's
continual change. Among these changes, moments of significant life transition can render …

Understanding dark side of online community engagement: an innovation resistance theory perspective

A Kumar, A Shankar, AK Tiwari, HJ Hong - Information Systems and e …, 2023 - Springer
This study examines the dark side of online communities, especially barriers to customer
engagement in online communities. A total of 301 responses from online community …

“Hunger Hurts but Starving Works” Characterizing the Presentation of Eating Disorders Online

JA Pater, OL Haimson, N Andalibi… - Proceedings of the 19th …, 2016 - dl.acm.org
Within the CSCW community, little has been done to systematically analyze online eating
disorder (ED) user generated content. In this paper, we present the results of a cross …

The major life events taxonomy: Social readjustment, social media information sharing, and online network separation during times of life transition

OL Haimson, AJ Carter, S Corvite… - Journal of the …, 2021 - Wiley Online Library
When people experience major life changes, this often impacts their self‐presentation,
networks, and online behavior in substantial ways. To effectively study major life transitions …

“That courage to encourage”: Participation and Aspirations in Chat-based Peer Support for Youth Living with HIV

N Karusala, DO Seeh, C Mugo, B Guthrie… - Proceedings of the …, 2021 - dl.acm.org
We present a qualitative study of a six-month pilot of WhatsApp-based facilitated peer
support groups, serving youth living with human immunodeficiency virus (HIV) in an informal …

'Routine Infrastructuring'as' Building Everyday Resilience with Technology' When Disruption Becomes Ordinary

B Semaan - Proceedings of the ACM on Human-Computer …, 2019 - dl.acm.org
Getting a divorce. Being diagnosed with a disease. Going through a relationship breakup.
Living through a natural disaster. All of these events are often life disrupting and debilitating …

" It's a lonely disease": Cultivating Online Spaces for Social Support among People Living with Dementia and Dementia Caregivers

J Johnson, V Arnold, AM Piper, GR Hayes - Proceedings of the ACM on …, 2022 - dl.acm.org
People living with dementia as well as dementia caregivers are finding new ways to provide
and receive support online. The emerging use of social media platforms-such as TikTok …

What is spiritual support and how might it impact the design of online communities?

CE Smith, A Kaur, KZ Gach, L Terveen… - Proceedings of the …, 2021 - dl.acm.org
Spirituality is an understudied topic in social computing; however, for Online Health
Community (OHC) users facing life-threatening illness, it is of fundamental importance …

Understanding the barriers and facilitators to sharing patient-generated health data using digital technology for people living with long-term health conditions: A …

E Simpson, R Brown, E Sillence, L Coventry… - Frontiers in public …, 2021 - frontiersin.org
Using digital technology to share patient-generated health data has the potential to improve
the self-management of multiple long-term health conditions. Sharing these data can allow …