Spina bifida is a birth defect in which the vertebral column is open, often with spinal cord
involvement. The most clinically significant subtype is myelomeningocele (open spina …

Purpose: We review the current literature regarding urological management of spina bifida
from prenatal diagnosis to adulthood. Materials and Methods: We searched MEDLINE® …

Objective To provide a systematic overview of self-management interventions (SMI) for
young people with chronic conditions with respect to content, formats, theories, and …

Objective This study aimed to evaluate rates of medical adherence, responsibility, and
independence skills across late childhood and adolescence in youth with spina bifida (SB) …

Self-management and independence behaviors are associated with improved health
conditions common to spina bifida such as skin integrity and bowel and bladder …

Background Self-management is critical to optimizing the health of individuals with a chronic
condition or disability and is, therefore, a central concept in individual and family-centered …

With an estimated 85% of individuals with spina bifida (SB) surviving into adulthood, SB-
specific transition to adult healthcare guidelines are warranted to address the diverse and …

Self-management has become a central concept in individual and family-centered care.
However, there are differences in both definitions and theoretical approaches that guide …

Introduction Goal‐oriented practices involve practitioners working collaboratively with clients
to identify, develop and focus on objectives for the therapeutic work. It has been suggested …

PURPOSE: To determine characteristics associated with self-management independence
and quality of life (QOL) among adolescents and young adults with spina bifida (AYASB) …