The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): a recruitment registry for Alzheimer's disease and related …

VM Ta Park, OL Meyer, JY Tsoh… - Alzheimer's & …, 2023 - Wiley Online Library
Introduction Clinical research focused on aging, Alzheimer's disease and related dementias
(ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders …

To share or not to share? Expected pros and cons of data sharing in radiological research

F Sardanelli, M Alì, MG Hunink, N Houssami… - European …, 2018 - Springer
The aims of this paper are to illustrate the trend towards data sharing, ie the regulated
availability of the original patient-level data obtained during a study, and to discuss the …

Constructing a local potential participant registry to improve Alzheimer's disease clinical research recruitment

JD Grill, D Hoang, DL Gillen, CG Cox… - Journal of …, 2018 - content.iospress.com
Potential participant registries are tools to address the challenge of slow recruitment to
clinical research. In particular, registries may aid recruitment to secondary prevention clinical …

A Protocol for the Inclusion of Minoritized Persons in Alzheimer Disease Research From the ADNI3 Diversity Taskforce

OC Okonkwo, MR Mindt, MT Ashford, C Conti… - JAMA network …, 2024 - jamanetwork.com
Importance Black or African American (hereinafter, Black) and Hispanic or Latino/a/x
(hereinafter, Latinx) adults are disproportionally affected by Alzheimer disease, but most …

The Community Engaged Digital Alzheimer's Research (CEDAR) Study: A Digital Intervention to Increase Research Participation of Black American Participants in the …

MR Mindt, MT Ashford, D Zhu, H Cham… - The journal of …, 2023 - Springer
Abstract Background Although Black/African American older adults bear significant
inequities in prevalence, incidence, and outcomes of Alzheimer's disease and related …

Asian Americans and Pacific Islanders' perspectives on participating in the CARE recruitment research registry for Alzheimer's disease and related dementias, aging …

V Ta Park, JD Grill, J Zhu, K Nguyen… - … Research & Clinical …, 2021 - Wiley Online Library
Abstract Introduction This study elicited Asian Americans and Pacific Islanders'(AAPI)
perspectives about recruitment strategies/messaging for participation in an aging …

[HTML][HTML] Recruiting to preclinical Alzheimer's disease clinical trials through registries

JD Grill - Alzheimer's & Dementia: Translational Research & …, 2017 - Elsevier
Participant registries are repositories of individuals who have expressed willingness to learn
about studies for which they may be eligible. Registries are increasingly being used to …

Exploring patient and staff member views on a 'consent for contact'system for sexual health research: A mixed methods study

A Hudda, E Bird, D Holmes… - … journal of STD & …, 2024 - journals.sagepub.com
Background Recruitment in sexual health research is challenging. This study explores the
potential of a Consent for Contact system (C4C)-generic consent for research contact-to …

Cross-sectional survey of parental barriers to participation in pediatric participant research registries

RA Slotkowski, SF Delair, KA Neemann - Plos one, 2022 - journals.plos.org
Research registries are a powerful tool for boosting recruitment into clinical trials. However,
little is known about how parents approach the decision to enroll their child in a pediatric …

Real-world Site Experiences With GeneMatch: The Role of a Recruitment-related Registry in the Context of Local Site Effort to Support Alzheimer Disease Prevention …

SH Bardach, JB Langbaum… - Alzheimer Disease & …, 2021 - journals.lww.com
Background: Registries have been proposed as a novel way to accelerate targeted
recruitment for Alzheimer disease prevention clinical trials. However, there are limited data …