Progressive fibrotic interstitial lung diseases (ILDs) are characterised by major reductions in
quality of life and survival and have similarities to certain malignancies. However, palliative …

Telomere biology disorders (TBD) are a heterogeneous group of diseases arising from
germline mutations affecting genes involved in telomere maintenance. Telomeres are DNA …

Rationale: Cough is a key symptom in patients with fibrotic interstitial lung disease (ILD).
Objectives: This study evaluated the prevalence, longitudinal change, associations, and …

Background People with pulmonary fibrosis often experience a protracted time to diagnosis,
high symptom burden and limited disease information. This review aimed to identify the …

Background: Research has extensively examined family members' grief prior to the death of
an individual with a life-limiting illness but several inconsistencies in its conceptualization of …

Introduction Pulmonary fibrosis (PF) and its most common form, idiopathic pulmonary
fibrosis (IPF), are chronic, progressive diseases resulting in increasing loss of lung function …

Aims Patients diagnosed with idiopathic pulmonary fibrosis (IPF) have a high symptom
burden and numerous needs that remain largely unaddressed despite advances in …

Despite several advances in treatment, idiopathic pulmonary fibrosis (IPF) remains a
progressive, symptomatic, and terminal disease in patients not suitable for lung …

Introduction: Advance care planning is recommended in chronic respiratory diseases,
including Idiopathic Pulmonary Fibrosis. In practice, uptake remains low due to patient …

Idiopathic pulmonary fibrosis is a progressive disease, with a high mortality within the first 3-
5 years from diagnosis and a poor quality of life mainly because of the burden of symptoms …