Challenges in mapping European rare disease databases, relevant for ML-based screening technologies in terms of organizational, FAIR and legal principles …

R Raycheva, K Kostadinov, E Mitova… - Frontiers in Public …, 2023 - frontiersin.org
Background Given the increased availability of data sources such as hospital information
systems, electronic health records, and health-related registries, a novel approach is …

Building expertise on FAIR through evolving Bring Your Own Data (BYOD) workshops: describing the data, software, and management-focused approaches and their …

CH Bernabé, L Thielemans, R Kaliyaperumal… - Data …, 2024 - direct.mit.edu
ABSTRACT Since 2014,“Bring Your Own Data” workshops (BYODs) have been organised to
inform people about the process and benefits of making resources Findable, Accessible …

A goal-oriented method for FAIRification planning

C Bernabé, TP Sales, E Schultes, N van Ulzen… - 2023 - researchsquare.com
The FAIR Principles provide guidance on how to improve the findability, accessibility,
interoperability, and reusability of digital resources. Since the publication of the principles in …