The need to consider context: A systematic review of factors involved in the consent process for genetic tests from the perspective of patients
F Coulombe, AM Laberge - AJOB Empirical Bioethics, 2024 - Taylor & Francis
Background: Informed consent for genetic tests is a well-established practice. It should be
based on good quality information and in keeping with the patient's values. Existing …
based on good quality information and in keeping with the patient's values. Existing …
Ethics of routine: a critical analysis of the concept of 'routinisation'in prenatal screening
A Kater-Kuipers, ID de Beaufort, RJH Galjaard… - Journal of medical …, 2018 - jme.bmj.com
In the debate surrounding the introduction of non-invasive prenatal testing (NIPT) in prenatal
screening programmes, the concept of routinisation is often used to refer to concerns and …
screening programmes, the concept of routinisation is often used to refer to concerns and …
Development and validation of a measure of informed choice for women undergoing non-invasive prenatal testing for aneuploidy
Non-invasive prenatal testing (NIPT) using cell-free DNA for aneuploidy is a highly accurate
screening test; however, concerns exist around the potential for routinisation of testing. The …
screening test; however, concerns exist around the potential for routinisation of testing. The …
The value of non-invasive prenatal testing: preferences of Canadian pregnant women, their partners, and health professionals regarding NIPT use and access
Background Canadian policies regarding the implementation and public coverage of non-
invasive prenatal testing (NIPT) are heterogeneous and shifting, with NIPT being publicly …
invasive prenatal testing (NIPT) are heterogeneous and shifting, with NIPT being publicly …
Offering prenatal diagnostic tests: European guidelines for clinical practice
For over four decades, it has been possible to offer prenatal diagnostic testing for fetal
abnormalities. Prenatal testing is now available for a wide range of monogenic disorders as …
abnormalities. Prenatal testing is now available for a wide range of monogenic disorders as …
Audiovisual information affects informed choice and experience of information in antenatal Down syndrome screening–a randomized controlled trial
U Björklund, A Marsk, C Levin, SG Öhman - Patient education and …, 2012 - Elsevier
OBJECTIVE: To evaluate the effects of an information film on making an informed choice
regarding Down syndrome screening, and women's knowledge and experiences of …
regarding Down syndrome screening, and women's knowledge and experiences of …
Prenatal genetic counseling in cross-cultural medicine: A framework for family physicians
AK Bhogal, F Brunger - Canadian Family Physician, 2010 - cfp.ca
OBJECTIVE To help family physicians practise effective genetic counseling and offer
practical strategies for cross-cultural communication in the context of prenatal genetic …
practical strategies for cross-cultural communication in the context of prenatal genetic …
How personal experiences feature in women's accounts of use of information for decisions about antenatal diagnostic testing for foetal abnormality
There has been a striking growth in the availability of health-related information based on
personal experience in recent years and internet users are often drawn towards other …
personal experience in recent years and internet users are often drawn towards other …
[HTML][HTML] Experience as knowledge: disability, distillation and (reprogenetic) decision-making
FK Boardman - Social Science & Medicine, 2017 - Elsevier
Abstract 'Experiential knowledge'is increasingly recognised as an important influence on
reproductive decision-making.'Experiential knowledge of disability'in particular is a …
reproductive decision-making.'Experiential knowledge of disability'in particular is a …
What knowledge is required for an informed choice related to non‐invasive prenatal screening?
E Griffin, G Hooker, M Grace… - Journal of Genetic …, 2023 - Wiley Online Library
Non‐invasive prenatal screening (NIPS) using cell‐free DNA is a screening test for fetal
aneuploidy offered by a variety of prenatal healthcare providers. Guidelines for genetic …
aneuploidy offered by a variety of prenatal healthcare providers. Guidelines for genetic …