The research landscape of tuberous sclerosis complex–associated neuropsychiatric disorders (TAND)—a comprehensive scoping review

S Vanclooster, S Bissell, AM van Eeghen… - Journal of …, 2022 - Springer
Background Tuberous sclerosis complex (TSC)–associated neuropsychiatric disorders
(TAND) is an umbrella term for the behavioural, psychiatric, intellectual, academic …

Narrative review of telemedicine applications in decentralized research

MR Cummins, H Soni, J Ivanova, T Ong… - Journal of clinical and …, 2024 - cambridge.org
Telemedicine enables critical human communication and interaction between researchers
and participants in decentralized research studies. There is a need to better understand the …

Leveraging telehealth to evaluate infants with prodromal autism spectrum disorder characteristics using the telehealth evaluation of development for infants

MR Talbott, S Dufek, G Young, SJ Rogers - Autism, 2022 - journals.sagepub.com
This study investigated the feasibility of recruiting and assessing infants with prodromal
autism characteristics in the first year of life via telehealth. Participants included 41 infants …

Neurobehavioral dimensions of prader willi syndrome: Relationships between sleep and psychosis-risk symptoms

KP O'Hora, Z Zhang, A Vajdi, L Kushan-Wells… - Frontiers in …, 2022 - frontiersin.org
Background Prader Willi Syndrome (PWS) is a genetic disorder caused by the absence of
expression of the paternal copies of maternally imprinted gene (s) located at 15q11–q13 …

[HTML][HTML] Telehealth for rare disease care, research, and education across the globe: A review of the literature by the IRDiRC telehealth task force

FH Chen, AL Hartman, MCV Letinturier… - European Journal of …, 2024 - Elsevier
Abstract The International Rare Diseases Research Consortium (IRDiRC) Telehealth (TH)
Task Force explored the use of TH for improving diagnosis, care, research, and education …

无痛分娩在降低自然分娩初产妇焦虑抑郁发生率中的应用

齐燕燕, 臧学利 - 蚌埠医学院学报, 2021 - xuebao.bbmu.edu.cn
无痛分娩在降低自然分娩初产妇焦虑抑郁发生率中的应用齐燕燕, 臧学利引用本文: 齐燕燕, 臧
学 Page 1 无痛分娩在降低自然分娩初产妇焦虑抑郁发生率中的应用 齐燕燕, 臧学利 引用本文 …

Use of communication technology to improve clinical trial participation in adolescents and young adults with cancer: consensus statement from the Children's …

V Avutu, V Monga, N Mittal, A Saha… - JCO oncology …, 2022 - ascopubs.org
Adolescents and young adults (AYAs; age 15-39 years) with cancer are under-represented
in cancer clinical trials because of patient, provider, and institutional barriers. Health care …

Preserved neonatal follow-up care during COVID-19: Use of neurodevelopmental evaluation via telehealth.

S Butt, J Nahman, C Cederberg… - Clinical Practice in …, 2024 - psycnet.apa.org
Objective: This retrospective study aimed to analyze the practicality of conducting
teleneurodevelopmental evaluations with a general clinical population of children under 5 …

Telehealth training in naturalistic communication intervention for mothers of children with Angelman syndrome

M Rispoli, E Shannon, C Voorhis, R Lang… - Advances in …, 2022 - Springer
Abstract Objectives Young children with Angelman syndrome have significant delays in
expressive communication. Parents of children with Angelman syndrome require training to …

Assessment of the reliability of at-home caregiver-collected anthropometric measurements

JJ Ly, A Sosa, M Heidman, MF Dixon… - Frontiers in …, 2024 - frontiersin.org
Introduction Anthropometric measurements provide valuable information about infant growth
patterns and can help identify nutrition, growth, and developmental concerns. With the …