Deconstructing the complexities of advance care planning outcomes: what do we know and where do we go? A scoping review

RD McMahan, I Tellez… - Journal of the American …, 2021 - Wiley Online Library
BACKGROUND/OBJECTIVES Advance care planning (ACP) has shown benefit in some, but
not all, studies. It is important to understand the utility of ACP. We conducted a scoping …

Disparities in palliative and hospice care and completion of advance care planning and directives among non-Hispanic Blacks: a scoping review of recent literature

M Bazargan, S Bazargan-Hejazi - American Journal of …, 2021 - journals.sagepub.com
Objectives: Published research in disparities in advance care planning, palliative, and end-
of-life care is limited. However, available data points to significant barriers to palliative and …

[HTML][HTML] Advance care planning, palliative care, and end-of-life care interventions for racial and ethnic underrepresented groups: a systematic review

T Jones, EA Luth, SY Lin, AA Brody - Journal of pain and symptom …, 2021 - Elsevier
Context Persons from underrepresented racial and ethnic groups experience disparities in
access to and quality of palliative and end-of-life care. Objectives To summarize and …

What is the evidence for efficacy of advance care planning in improving patient outcomes? A systematic review of randomised controlled trials

C Malhotra, M Shafiq, APM Batcagan-Abueg - BMJ open, 2022 - bmjopen.bmj.com
Objectives To conduct an up-to-date systematic review of all randomised controlled trials
assessing efficacy of advance care planning (ACP) in improving patient outcomes …

The effect of end-of-life decision-making tools on patient and family-related outcomes of care among ethnocultural minorities: A systematic review

A Nayfeh, LG Conn, C Dale, S Kratina, B Hales… - Plos one, 2022 - journals.plos.org
Background End-of-life decision-making tools are used to establish a shared understanding
among patients, families and healthcare providers about medical treatment and goals of …

Application of critical race theory in palliative care research: a scoping review

L Marcewicz, SK Kunihiro, KA Curseen… - Journal of Pain and …, 2022 - Elsevier
Context Structural racism negatively impacts individuals and populations. In the medical
literature, including that of palliative care, structural racism's influence on interracial …

Advanced HIV disease and health-related suffering—Exploring the unmet need of palliative care

A Rangaraj, S Connor, R Harding, C Pinto… - The Lancet …, 2023 - thelancet.com
With more than 38 million people living with HIV worldwide, the scale-up of antiretroviral
therapy ensures nearly 28 million of them receive regular treatment. However, a substantial …

Preparedness for serious illnesses: Impact of ethnicity, mistrust, perceived discrimination, and health communication

M Bazargan, S Cobb, S Assari… - American Journal of …, 2022 - journals.sagepub.com
Background: Increasing severity of serious illness requires individuals to prepare and make
decisions to mitigate adverse consequences of their illness. In a racial and ethnically diverse …

A decade of studying drivers of disparities in end-of-life care for Black Americans: using the NIMHD framework for health disparities research to map the path ahead

E Chuang, S Yu, A Georgia, J Nymeyer… - Journal of pain and …, 2022 - Elsevier
Objective The purpose of this paper is to provide a review of the existing literature on racial
disparities in quality of palliative and end-of-life care and to demonstrate gaps in the …

Effect of family centered (FACE®) advance care planning on longitudinal congruence in end-of-life treatment preferences: a randomized clinical trial

ME Lyon, L Squires, RK Scott, D Benator, L Briggs… - AIDS and Behavior, 2020 - Springer
Trial tested effect of advance care planning on family/surrogates' understanding of patients'
end-of-life treatment preferences longitudinally. A multisite, assessor-blinded, intent-to-treat …