Background Health research is evolving to include patient stakeholders (patients, families
and caregivers) as active members of research teams. Frameworks describing the …

Plain English summary There have been many attempts to improve how healthcare services
are developed and delivered. Despite this, we know that there are many gaps and …

Charged with ensuring that research produces useful evidence to inform health decisions,
the Patient-Centered Outcomes Research Institute (PCORI) requires investigators to engage …

Background Patient engagement in research (PEIR) is promoted to improve the relevance
and quality of health research, but has little conceptualization derived from empirical data …

Plain English summary Patient engagement (or patient and public involvement) in health
research is becoming a requirement for many health research funders, yet many …

Objective There is growing emphasis on health care organizations to ensure that lay people
are meaningfully engaged as partners on research teams. Our aim was to explore the …

Background There is growing interest in patient and stakeholder engagement in research,
yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes …

Background Engaging those who influence, administer and/or who are active users
(“knowledge users”) of health care systems, as co-producers of health research, can help to …

Consumer and carer involvement in mental health research is a growing and developing
field. Whilst there has been policy and in‐principle support for such involvement from …

Background Underestimation of relapse in multiple sclerosis (MS) is detrimental to the
patient as well as to their relationship with their MS healthcare professional (HCP). Objective …