Background Losing a child tragically impacts the well-being and functioning of parents. With
these effects extending beyond emotional, physical morbidity and compromising self …

Context Children with medical complexity (CMC) have multiple significant chronic health
conditions that result in functional limitations and high health care utilization. The population …

Background Provision of paediatric palliative care for children with life-threatening or life-
limiting conditions and their families is often complex. Guidelines can support professionals …

Background: An estimated 21 million children worldwide would benefit from palliative care
input and over 7 million die each year. For parents of these children this is an intensely …

OBJECTIVES: Children with complex chronic conditions often receive inpatient and end-of-
life care in the ICU, yet little is known about the clinical care strategies that best support this …

Background: Many children and adolescents with incurable cancer and their families prefer
to receive end-of-life care and to die at home. This implies a transition of care from hospital …

To assess current practice and provide a basis for a provincial template, clinicians at a
Canadian pediatric hospice reviewed the literature surrounding pediatric advance care …

Background Globally, initiation of paediatric advance care planning discussions is
advocated early in the illness trajectory; however, evidence suggests it occurs at crisis points …

Background Patients with left ventricular assist devices (LVADs) implanted as destination
therapy may receive suboptimal preparation for and care at the end of life, but there is …

Context Parents desire more opportunities for advance care planning (ACP), however, large-
scale adoption of ACP for seriously ill children remains unrealized. Little is known about …