Ethical microbiome research with Indigenous communities

SM Mangola, JR Lund, SL Schnorr… - Nature Microbiology, 2022 - nature.com
Human–microbiome interactions have been associated with evolutionary, cultural and
environmental processes. With clinical applications of microbiome research now feasible, it …

Community-based participatory research in rural African contexts: Ethico-cultural considerations and lessons from Ghana

R Appiah - Public Health Reviews, 2020 - Springer
Researchers conducting community-based participatory research (CBPR) with vulnerable
populations in rural African settings are confronted with distinctive ethical and cultural …

Using iterative learning to improve understanding during the informed consent process in a South African psychiatric genomics study

MM Campbell, E Susser, S Mall, SG Mqulwana… - PloS one, 2017 - journals.plos.org
Obtaining informed consent is a great challenge in global health research. There is a need
for tools that can screen for and improve potential research participants' understanding of …

Narrating hope and resistance: A critical analysis of sources of agency among P alestinian children living under military violence

G Veronese, F Cavazzoni… - Child: care, health and …, 2018 - Wiley Online Library
Background In light of critical and socioconstructionist theories, the aim of our research was
to analyze source of agency, psychological adjustment to trauma as protective factors …

A systematic review and meta-analysis of medical students' perspectives on the engagement in research

C Naing, VN Wai, J Durham, MA Whittaker, NN Win… - Medicine, 2015 - journals.lww.com
Engaging students in active learning lies at the center of effective higher education. In
medical schools, students' engagement in learning and research has come under …

Comprehension of informed consent and voluntary participation in registration cohorts for phase IIb HIV vaccine trial in Dar Es Salaam, Tanzania: a qualitative …

MK Iseselo, EAM Tarimo - BMC Medical Ethics, 2024 - Springer
Background Informed consent as stipulated in regulatory human research guidelines
requires volunteers to be well-informed about what will happen to them in a trial. However …

Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand

PY Cheah, N Jatupornpimol, B Hanboonkunupakarn… - BMC medical …, 2018 - Springer
Background Research funders, regulatory agencies, and journals are increasingly expecting
that individual-level data from health research will be shared. Broad consent to such sharing …

Community sensitization and decision‐making for trial participation: a mixed‐methods study from the Gambia

S Dierickx, S O'Neill, C Gryseels… - Developing world …, 2018 - Wiley Online Library
Background Ensuring individual free and informed decision‐making for research
participation is challenging. It is thought that preliminarily informing communities through …

Optimising informed consent for participants in a randomised controlled trial in rural Uganda: a comparative prospective cohort mixed-methods study

J Ditai, J Kanyago, MR Nambozo, NM Odeke, J Abeso… - Trials, 2018 - Springer
Background Poor participant understanding of research information can be a problem in
community interventional studies with rural African women, whose levels of illiteracy are …

[HTML][HTML] Factors influencing participation in an Ebola vaccine trial among front-line workers in Guinea

KH Grantz, P Claudot, M Kambala, M Kouyaté… - Vaccine, 2019 - Elsevier
Background Alongside the clinical aspects of the immunogenicity and safety trial of an Ebola
vaccine deployed among front-line workers, a qualitative study was conducted to describe …