Impact of telemedicine on health outcomes in children with medical complexity: an integrative review

F Ferro, AE Tozzi, I Erba, I Dall'Oglio… - European journal of …, 2021 - Springer
Children with medical complexity (CMC) are a high priority population with chronic illnesses
dependent on the use of health services, on technological systems to support their vital …

A national mental health profile of parents of children with medical complexity

ND Bayer, H Wang, JA Yu, DZ Kuo, JS Halterman… - Pediatrics, 2021 - publications.aap.org
OBJECTIVES The mental health of parents of children with medical complexity (CMC) is
poorly understood, yet it drives child and family health outcomes. For parents of CMC …

Models of care delivery for children with medical complexity

E Pordes, J Gordon, LM Sanders, E Cohen - Pediatrics, 2018 - publications.aap.org
Children with medical complexity (CMC) are a subset of children and youth with special
health care needs with high resource use and health care costs. Novel care delivery models …

Outcomes research on children with medical complexity: A scoping review of gaps and opportunities

WS Looman, YS Park, TT Gallagher… - Child: Care, Health …, 2020 - Wiley Online Library
Background There has been a recent, rapid increase in the number of studies of children
with medical complexity (CMC) and their families. There is a need for attention to gaps and …

The impact of severe rare chronic neurological disease in childhood on the quality of life of families—a study on MLD and PCH2

L Ammann-Schnell, S Groeschel, C Kehrer… - Orphanet journal of rare …, 2021 - Springer
Background Rare and severe neurological disorders in childhood not only heavily affect the
life perspective of the patients, but also their caregivers and families. The aim of this study …

The Clinical Definition of Children With Medical Complexity: A Modified Delphi Study

K Millar, C Rodd, G Rempel, E Cohen, KM Sibley… - …, 2024 - publications.aap.org
Video Abstract BACKGROUND AND OBJECTIVES: Children with medical complexity (CMC)
comprise a subgroup of children with severe chronic diseases. A conceptual definition for …

Health-related quality of life outcomes of a telehealth care coordination intervention for children with medical complexity: a randomized controlled trial

WS Looman, RL Hullsiek, L Pryor… - Journal of Pediatric …, 2018 - Elsevier
The purpose of this study was to explore health-related quality of life (HRQL) and family
impact in the context of an advanced practice registered nurse–delivered telehealth care …

Parents' experiences and responses to an intervention for psychological preparation of children and families during the child's radiotherapy

C Ångström-Brännström, V Lindh… - Journal of Pediatric …, 2018 - journals.sagepub.com
The aim of this study was to evaluate parents' experiences and responses to a systematic
intervention for psychological preparation of children and families during the child's …

Impact of caring for children with medical complexity on parents' employment and time

CG Mandic, S Johaningsmeir, TE Corden… - Community, Work & …, 2017 - Taylor & Francis
Objectives: This study examined parental care of children with medical complexity (CMC) in
terms of time spent providing care and impacts on employment and career. Methods: We …

Parents' assessment of an advanced-practice nurse and care coordination assistant model medical care coordination program for children with medical complexity

S Donnelly, E Shaw, P Timoney, M Foca… - Journal of Pediatric …, 2020 - Elsevier
Introduction Care for many children with medical complexity (CMC) is fragmented, leading to
increased family dissatisfaction and stress. We evaluated the impact of an Advanced …