Health related quality of life in Middle Eastern children with beta-thalassemia

G Caocci, F Efficace, F Ciotti, MG Roncarolo… - BMC blood …, 2012 - Springer
Background Thalassemia is a common disorder worldwide with a predominant incidence in
Mediterranean countries, North Africa, the Middle East, India, Central Asia, and Southeast …

Long-term health-related quality of life evaluated more than 20 years after hematopoietic stem cell transplantation for thalassemia

G La Nasa, G Caocci, F Efficace… - Blood, The Journal …, 2013 - ashpublications.org
The principal aim of our study was to investigate whether patients transplanted more than 20
years ago for β-thalassemia major had a different health-related quality of life (HRQoL) …

Health-related quality of life in pediatric and adolescent patients with transfusion-dependent ß-thalassemia in upper Egypt (single center study)

GLA Hakeem, SO Mousa, AN Moustafa… - Health and quality of life …, 2018 - Springer
Background Thalassemia is a major health problem that disturbs the lifestyle of the affected
patient. The aim of this work is to detect the impact of thalassemia on the quality of life …

Quality of life in children with thalassemia and their caregivers in India

S Sharma, B Seth, P Jawade, M Ingale… - The Indian Journal of …, 2017 - Springer
Objectives To assess and compare the Quality of Life (QOL) of children with beta-
thalassemia major on regular transfusion therapy with normal children, and of the caregivers …

[HTML][HTML] Health-related quality of life and health utility values in beta thalassemia major patients receiving different types of iron chelators in Iran

M Seyedifar, FA Dorkoosh, AA Hamidieh… - … journal of hematology …, 2016 - ncbi.nlm.nih.gov
Background: Thalassemia is a chronic, inherited blood disorder, which in its most severe
form, causes life-threatening anemia. Thalassemia patients not only engage with difficulties …

[HTML][HTML] Factors affecting quality of life in children and adolescents with thalassemia in Iraqi Kurdistan

NA Mikael, NAS Al-Allawi - Saudi medical journal, 2018 - ncbi.nlm.nih.gov
Objectives: To assess the health related quality of life (HRQoL) in Iraqi Kurd children and
adolescents with thalassemia, and identify the factors that affect it. Methods: In the period …

[PDF][PDF] Quality of life among children with beta-thalassemia major treated in Western Saudi Arabia

MD Ayoub, SA Radi, AM Azab, AA Abulaban… - Saudi Med J, 2013 - academia.edu
Objectives: To assess the quality of life among children and adolescents with thalassemia
major. Methods: his cross-sectional study used the Pediatric Quality of Life Inventory …

Impaired physical ability in patients with transfusion‐dependent β‐thalassaemia: Can regular physical activity be a countermeasure?

M Noguer, P Berthon, C Makowski… - British Journal of …, 2024 - Wiley Online Library
Transfusion‐dependent β‐thalassaemia (TDβT) is a genetic disorder characterised by
reduced or absent β‐globin chain synthesis, resulting in chronic anaemia. Treatment …

Thalassemia Major: how do we improve quality of life?

N Dhirar, J Khandekar, D Bachani, D Mahto - Springerplus, 2016 - Springer
Abstract Background Thalassemia Major is a preventable genetic disorder characterized by
abnormal hemoglobin synthesis and lifelong blood transfusions. The children suffering from …

Quality of life outcomes in a pediatric thalassemia population in Egypt

S Adam, H Afifi, M Thomas, P Magdy, G El-Kamah - Hemoglobin, 2017 - Taylor & Francis
Thalassemia is a disorder of hemoglobin (Hb) synthesis characterized by chronic hemolysis.
In β-thalassemias major (β-TM), patients require regular transfusion at an early age due to …