Palliative care across the life span for children with heart disease: a scientific statement from the American Heart Association

ED Blume, R Kirsch, MK Cousino… - … Quality and Outcomes, 2023 - Am Heart Assoc
Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …

ISHLT consensus statement for the selection and management of pediatric and congenital heart disease patients on ventricular assist devices Endorsed by the …

A Lorts, J Conway, M Schweiger, I Adachi… - The Journal of Heart …, 2021 - jhltonline.org
Background Heart failure (HF) is a significant cause of mortality in children and therefore
there is interest in understanding the optimal way to support these children with Ventricular …

Finishing well: compassionate extracorporeal membrane oxygenation discontinuation

DS Machado, D Garros, L Montuno, LK Avery… - Journal of pain and …, 2022 - Elsevier
Abstract Extracorporeal Membrane Oxygenation (ECMO) is associated with significant
mortality. Provision of high-quality end-of-life (EOL) care for patients supported on ECMO …

State of the science and future research directions in palliative and end-of-life care in paediatric cardiology: a report from the Harvard Radcliffe Accelerator Workshop

MK Cousino, BT Lord, ED Blume - Cardiology in the Young, 2022 - cambridge.org
Workshop proceedings, priorities, and recommendations from the “State of the Science and
Future Directions in Palliative and End-of-Life Care in Pediatric Cardiology,” a Harvard …

Variability in clinical decision‐making for ventricular assist device implantation in pediatrics

A Joong, JG Gossett, ED Blume, P Thrush… - Pediatric …, 2020 - Wiley Online Library
Background Minimal data exist on clinical decision‐making in VAD implantation in
pediatrics. This study aims to identify areas of consensus/variability among pediatric VAD …

Pediatric palliative care in the heart failure, ventricular assist device and transplant populations: supporting patients, families and their clinical teams

KD Hope, PN Bhat, WJ Dreyer, BA Elias, JL Jump… - Children, 2021 - mdpi.com
Heart failure is a life-changing diagnosis for a child and their family. Pediatric patients with
heart failure experience significant morbidity and frequent hospitalizations, and many …

Ventricular assist device support for children with chemotherapy‐induced cardiomyopathy and advanced heart failure: Perspectives gained from a single‐center …

K Puri, SW Denfield, I Adachi, WJ Dreyer… - Pediatric …, 2022 - Wiley Online Library
Background Guidance and data on ventricular assist device (VAD) support for children with
chemotherapy‐induced cardiomyopathy, particularly within the first 2 years after …

Providing compassionate end of life care in the setting of mechanical circulatory support

A Joong, SF Derrington, A Patel, PT Thrush… - Current Pediatrics …, 2019 - Springer
Abstract Purpose of Review To outline key elements in providing compassionate end-of-life
care for pediatric patients with end-stage heart failure on mechanical circulatory support …

End-of-life in pediatric patients supported by ventricular assist devices: a network database cohort study

SA Hollander, KA Pyke-Grimm… - Pediatric Critical Care …, 2023 - journals.lww.com
OBJECTIVES: Most pediatric patients on ventricular assist device (VAD) survive to
transplantation. Approximately 15% will die on VAD support, and the circumstances at the …

[HTML][HTML] Compassionate deactivation of pediatric ventricular assist devices: A review of 14 cases

SA Hollander, BD Kaufman, C Bui, B Gregori… - Journal of Pain and …, 2021 - Elsevier
Context Compassionate deactivation (CD) of ventricular assist device (VAD) support is a
recognized option for children when the burden of therapy outweighs the benefits …