Background Privacy legislation in most jurisdictions allows the disclosure of health data for
secondary purposes without patient consent if it is de-identified. Some recent articles in the …

Background: Explicit patient consent requirements in privacy laws can have a negative
impact on health research, leading to selection bias and reduced recruitment. Often …

There is a strong movement to share individual patient data for secondary purposes,
particularly for research. A major obstacle to broad data sharing has been the concern for …

Background The secondary use of health data is central to biomedical research in the era of
data science and precision medicine. National and international initiatives, such as the …

Offering compelling practical and legal reasons why de-identification should be one of the
main approaches to protecting patients' privacy, this book outlines a proven, risk-based …

Background: Engaging consumers in sharing information from personally controlled health
records (PCHRs) for health research may promote goals of improving care and advancing …

For pediatric rare diseases, the number of patients available to support traditional research
methods is often inadequate. However, patients who have similar diseases cluster “virtually” …

An organization's workforce is arguably the greatest asset of any organization, and tourism
and hospitality is an extremely labor-intensive industry. This volume takes an in-depth look …

A systematic literature review of researchers and healthcare professionals' attitudes towards
the secondary use and sharing of health administrative and clinical trial data was conducted …

Objectives: This study sought to determine public opinion on alternatives to project-specific
consent for use of their personal information for health research. Design: The authors …