Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American …

JK Peterson, S Clarke, BD Gelb… - Journal of the …, 2024 - ahajournals.org
Due to improvements in recognition and management of their multisystem disease, the long‐
term survival of infants, children, and adolescents with trisomy 21 and congenital heart …

Optimising motor development in the hospitalised infant with CHD: factors contributing to early motor challenges and recommendations for assessment and …

SC Rogers, L Malik, J Fogel, B Hamilton… - Cardiology in the …, 2023 - cambridge.org
Background: Neurodevelopmental challenges are the most prevalent comorbidity
associated with a diagnosis of critical CHD, and there is a high incidence of gross and fine …

Caring for hearts and minds: a quality improvement approach to individualized developmental care in the cardiac intensive care unit

SC Butler, V Rofeberg, M Smith-Parrish… - Frontiers in …, 2024 - frontiersin.org
Introduction Infants with congenital heart disease (CHD) are at high risk for developmental
differences which can be explained by the cumulative effect of medical complications along …

Association of postnatal opioid exposure and 2-year neurodevelopmental outcomes in infants undergoing cardiac surgery

ML O'Byrne, K Baxelbaum, V Tam, H Griffis… - Journal of the American …, 2024 - jacc.org
Background Opioids are commonly used to provide analgesia during and after congenital
heart surgery. The effects of exposure to opioids on neurodevelopment in neonates and …

Meta-regression of sulcal patterns, clinical and environmental factors on neurodevelopmental outcomes in participants with multiple CHD types

L Maleyeff, HJ Park, ZSH Khazal, D Wypij… - Cerebral …, 2024 - academic.oup.com
Congenital heart disease affects 1% of infants and is associated with impaired
neurodevelopment. Right-or left-sided sulcal features correlate with executive function …

Simulation Training to Increase Holding of Fragile Infants in Cardiac Intensive Care Units

C Rachwal, M Smith-Parrish, V Rofeberg… - American Journal of …, 2024 - aacnjournals.org
Background Promoting bonding and neurodevelopmental care is an important element in
the cardiovascular intensive care unit (CICU); however, holding of infants by family members …

Exploring relationships between parental stress, coping, and psychological outcomes for parents of infants with CHD

T Casey, C Matthews, M Lavelle, D Kenny… - Cardiology in the …, 2024 - cambridge.org
Objective: This study aimed to explore relationships between parental stress, coping, and
outcomes for parents of infants with CHD, via observational approach reflecting domains of …

The Alberta Infant Motor Scale as an Outcomes Measure of Gross Motor Abilities after Early Complex Cardiac Surgery

R Baril, AR Joffe, JC Andersen, S Khademioureh… - Pediatric …, 2024 - Springer
To address the research hypothesis that the Alberta Infant Motor Scale (AIMS) completed
following complex cardiac surgery (CCS) is a useful outcomes measure this study …

Differences in gross motor and fine motor outcomes for toddlers after early complex cardiac surgery

CMT Robertson, S Khademioureh, IA Dinu… - Cardiology in the …, 2024 - cambridge.org
Objectives: To determine whether gross motor scores of toddlers after complex cardiac
surgery were different from fine motor scores and were adequately represented by motor …

Optimizing Quality of Life in Children with Complex Congenital Heart Disease

AC Demianczyk, M Marshall, R Rao, A Cassedy… - … Treatment Options in …, 2024 - Springer
Abstract Purpose of Review Individuals with congenital heart disease (CHD) can experience
long-term morbidities related to physical, neurodevelopmental, and psychosocial …