Family experiences with palliative care for children at home: a systematic literature review

A Winger, LG Kvarme, B Løyland, C Kristiansen… - BMC palliative …, 2020 - Springer
Background The main goal of pediatric palliative care (PPC) is to improve or maintain the
best possible quality of life (QoL) for the child and their family. PPC can be provided in …

A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life

K Greenfield, S Holley, DE Schoth… - Palliative …, 2020 - journals.sagepub.com
Background: Symptom management for infants, children and young people at end of life is
complex and challenging due to the range of conditions and differing care needs of …

[HTML][HTML] Experiences with the end-of-life decision-making process in children with cancer, their parents, and healthcare professionals: A systematic review and meta …

M Hirata, K Kobayashi - Journal of Pediatric Nursing, 2023 - Elsevier
Background Decision-making during the end-of-life (EOL) phase for children with cancer is
extremely difficult for parents. We synthesized the qualitative experiences of children with …

“I checked her while she was sleeping just to make sure she was still alive”: A qualitative study of parents and caregivers of children with chronic disease in Indonesia

R Mariyana, F Betriana - Journal of pediatric nursing, 2021 - Elsevier
Purpose Caring for children with chronic disease is a stressful and challenging experience
for parents and caregivers. This study aimed to describe the experiences of parents and …

Electronic assessment and tracking of pain at home: a prospective study in children with hematologic or solid tumors

E Tiozzo, S Fondi, V Biagioli… - Journal of Pediatric …, 2021 - journals.sagepub.com
This study aimed to evaluate the intensity and characteristics of pain, which was assessed at
home by children with cancer or their parents using an app for mobile devices, for a 1-month …

DISTRAKSI BERBASIS MODEL ADAPTASI ROY: INTERVENSI MENGURANGI KECEMASAN DAN NYERI PEMASANGAN INFUS PADA ANAK KANKER …

C Casman, A Allenidekania… - Quality: Jurnal …, 2021 - ejournal.poltekkesjakarta1.ac.id
Anak kanker perlu dipasang infus sebagai akses kemoterapi. Pemasangan infus
menyebabkan kecemasan dan nyeri pada anak. Model Adaptasi Roy sebagai pendekatan …

Progress in psycho-oncology with special reference to developing countries

RS Murthy, A Alexander - Current Opinion in Psychiatry, 2019 - journals.lww.com
A significant proportion of the general population are living with cancer. There are significant
psychosocial needs largely influenced by social, economic, cultural, religious aspects of the …

Family Perspectives on Key Elements of Good Home Palliative Care in South and Southeast Asia: A Scoping Review

RB Wicaksono, A Muhaimin… - Home Health Care …, 2024 - journals.sagepub.com
Palliative care is a comprehensive approach aimed at improving the quality of life of patients
with serious illness and their families. Nevertheless, there exists a dearth of systematically …

Understanding the toolbox: A mixed methods study of attitudes, barriers and facilitators in parental intervention of children's cancer pain at home

RS Parker, S McKeever, A Twycross… - Journal of Child …, 2021 - journals.sagepub.com
Children with cancer experience pain throughout their cancer trajectory. Pain has short-and
long-term negative consequences for children physically and psychologically. Children with …

Perawatan Paliatif Berbasis Rumah: Dampak Positif untuk Anak dengan Kanker

EN Tunjungsari, A Allenidekania… - Jurnal …, 2023 - journal2.stikeskendal.ac.id
Kanker masih menjadi salah satu penyebab kematian utama pada anak dan remaja, dan
diperkirakan banyak dari mereka yang membutuhkan pelayanan paliatif pediatrik, salah …