Qualitative research: Ethical considerations

AM Pietilä, SM Nurmi, A Halkoaho… - The application of content …, 2020 - Springer
Ethical aspects include perspectives of subject protection and conducting research based
on ethical standards. This chapter aims to highlight the ethical aspects of qualitative …

Privacy of clinical research subjects: an integrative literature review

SM Nurmi, M Kangasniemi… - Journal of Empirical …, 2019 - journals.sagepub.com
With changes in clinical research practice, the importance of a study-subject's privacy and
the confidentiality of their personal data is growing. However, the body of research is …

Indigenous data governance approaches applied in research using routinely collected health data: a scoping review

T Engstrom, EH Lobo, K Watego, C Nelson… - npj Digital …, 2024 - nature.com
Globally, there is a growing acknowledgment of Indigenous Peoples' rights to control data
related to their communities. This is seen in the development of Indigenous Data …

Toward a framework for assessing privacy risks in multi-omic research and databases

C Dupras, EM Bunnik - The American Journal of Bioethics, 2021 - Taylor & Francis
While the accumulation and increased circulation of genomic data have captured much
attention over the past decade, privacy risks raised by the diversification and integration of …

A qualitative study of big data and the opioid epidemic: recommendations for data governance

EA Evans, E Delorme, K Cyr, DM Goldstein - BMC Medical Ethics, 2020 - Springer
Background The opioid epidemic has enabled rapid and unsurpassed use of big data on
people with opioid use disorder to design initiatives to battle the public health crisis …

Quantifying the primary and secondary effects of antimicrobial resistance on surgery patients: methods and data sources for empirical estimation in England

NR Naylor, S Evans, KB Pouwels… - Frontiers in Public …, 2022 - frontiersin.org
Antimicrobial resistance (AMR) may negatively impact surgery patients through reducing the
efficacy of treatment of surgical site infections, also known as the “primary effects” of AMR …

Diabetes technology meeting 2021

NY Xu, KT Nguyen, AY DuBord… - Journal of diabetes …, 2022 - journals.sagepub.com
Diabetes Technology Society hosted its annual Diabetes Technology Meeting on November
4 to November 6, 2021. This meeting brought together speakers to discuss various …

The UK National Data Guardian for health and care's review of data security, consent and opt-outs: leadership in balancing public health with rights to privacy?

T Chan, C Di Iorio, C Kuziemsky, S Liaw… - BMJ Health and Care …, 2016 - ora.ox.ac.uk
Sharing health and social care data is essential to the delivery of high quality health care as
well as disease surveillance, public health, and for conducting research. However, these …

A student-centred approach to undergraduate course design in occupational therapy

S Pazell, A Hamilton - Higher Education Research & Development, 2021 - Taylor & Francis
Undergraduate education is competitive. User experience is important to course design
because it can improve user-satisfaction and learning. Action research methodology was …

Enabling cost-effective population health monitoring by exploiting spatiotemporal correlation: An empirical study

D Chen, J Wang, W Ruan, Q Ni, S Helal - ACM Transactions on …, 2021 - dl.acm.org
Because of its important role in health policy-shaping, population health monitoring (PHM) is
considered a fundamental block for public health services. However, traditional public health …