Measuring family quality of life: scoping review of the available scales and future directions

GH Alnahdi, A Alwadei, F Woltran… - International journal of …, 2022 - mdpi.com
The lack of quality of life is a key issue for families with children with an intellectual disability.
While the quality of life for people with disabilities has previously been researched as an …

Understanding adaptability in the family environment in facing COVID-19: A review

S Nursetiawati, JS Siregar, DP Josua - Heliyon, 2023 - cell.com
Adaptation is a research field that is trending in the face of the coronavirus disease 2019
(COVID-19) outbreak in various parts of the country. The ability to adapt is one way for …

Consensus statement for the management and treatment of Sturge-Weber syndrome: neurology, neuroimaging, and ophthalmology recommendations

S Sabeti, KL Ball, SK Bhattacharya, E Bitrian… - Pediatric …, 2021 - Elsevier
Abstract Background Sturge-Weber syndrome (SWS) is a sporadic, neurocutaneous
syndrome involving the skin, brain, and eyes. Because of the variability of the clinical …

Parental stress and disability in offspring: A snapshot during the COVID-19 pandemic

M Siracusano, A Riccioni, LE Gialloreti, E Segatori… - Brain sciences, 2021 - mdpi.com
Parenting a child with a disability, such as neurodevelopmental disorders and genetic
syndromes, implies a high level of stress. During the COVID-19 outbreak—as a period …

Knowledge of childhood autism among nurses working in governmental hospitals of Addis Ababa, Ethiopia

S Tasew, H Mekonnen, AT Goshu - SAGE open medicine, 2021 - journals.sagepub.com
Introduction: Autism is a neurodevelopmental disorder that occurs in the early childhood
period and is characterized by altered social interaction, communication problems …

The effectiveness of dialectical behavior group therapy on stress, depression, and cognitive emotion regulation in mothers of intellectually disabled students: A …

H Shareh, M Yazdanian - Clinical Child Psychology and …, 2023 - journals.sagepub.com
Introduction This study aimed to evaluate the effectiveness of dialectical behavior group
therapy (DBGT) regarding stress, depression, and cognitive emotion regulation in mothers of …

Care burden, coping styles and involvement in care in mothers of autistic children in pandemic of COVID‐19

F Mohammad, N Sani, K Oshvandi, SZ Masoumi… - Nursing …, 2022 - Wiley Online Library
Aim The aim of the present study was to investigate the burden of care, coping styles and
involvement in the care of mothers of autistic children in the pandemic of COVID‐19 in …

Anxiety, Stress, and Resilience Strategies in Parents of Children with Typical and Late Psychosocial Development: Comparative Analysis

F Andrioni, C Coman, RC Ghita, MC Bularca… - International journal of …, 2022 - mdpi.com
The child's developmental characteristics influence the psycho-social features in the
behavior of parents. This aspect is relevant in building effective strategies for psychological …

Perceived stress moderates the relationship between family support and family quality of life among parents of children living with intellectual and developmental …

CE Nwafor, M Ofonedu, NI Nwankwo… - Journal of Policy and …, 2022 - Wiley Online Library
In Nigeria, the prevalence of intellectual and/or developmental disabilities (IDD) is relatively
high, and there is no harmonized national policy to subsidize care and to assist families in …

Family Caregiver Adaptation during the Transition to Adulthood of Individuals with Intellectual Disabilities: A Scoping Review

S Kanthasamy, N Miskon, J Barlas, NV Marsh - Healthcare, 2024 - mdpi.com
During the transition to adulthood, individuals diagnosed with intellectual disability (ID) and
their family caregivers have unique experiences. This scoping review studies the sources of …