[HTML][HTML] A scoping review of literature: What has been studied about adolescents and young adults (AYAs) with cancer?

CM Telles - Cancer Treatment and Research Communications, 2021 - Elsevier
Purpose To map, organize and analyze the articles published in the last five years about
AYAs with cancer. Methods CAPES database and Google Scholar were searched to identify …

Research involvement and engagement of adolescent and young adults in a cancer trajectory: a 5-year experience from a patient support facility at a university …

H Pappot, SK Meier, M Hjerming, K Piil… - Research Involvement …, 2023 - Springer
Background The purpose of this case study is to describe how a vulnerable group of patients
can be included in research. The activities, challenges, lessons learned, and reflections on …

[HTML][HTML] Development of Quality of Life in Adolescents and Young Adults With Cancer Using a Patient Support Smartphone App: Prepost Interventional Study

L Bentsen, S Hanghøj, M Hjerming, MB Bergmann… - JMIR cancer, 2023 - cancer.jmir.org
Background Adolescents and young adults often experience existential concerns in addition
to side effects during a cancer trajectory, which they often carry alone. Thus, cohesion with …

Adolescents' experiences with patient engagement in respiratory medicine

B Groot, C Dedding, E Slob, H Maitland… - Pediatric …, 2021 - Wiley Online Library
Objective Adolescent engagement in decision‐making processes in health care and
research in the field of chronic respiratory diseases is rare but increasingly recognized as …

A national guideline for youth-friendly health services developed by chronically ill young people and health care professionals–a Delphi study

EL Thomsen, PG Hertz, C Blix… - International journal of …, 2022 - degruyter.com
Objectives Significant variation in cultural and socio-economic factors across different
countries means that modification of existing guidelines for youth-friendly health services are …

Experiences of involvement processes during participation in cancer service user initiatives from an adolescent and young adult perspective

S Hanghøj, H Pappot, LL Hjalgrim… - International Journal of …, 2022 - degruyter.com
Background Service user participation contributes to the improvement of health care
services for the betterment of conditions experienced by patients. However, there is a lack of …