BACKGROUND Although mental health difficulties can severely complicate the lives of
children and young people (CYP) with long-term physical conditions (LTCs), there is a lack …

Abstract Background Health Professionals (HPs) play an important role in supporting
parents to care for their children, by facilitating parents' knowledge and skills development …

In paediatric palliative care (PPC), parents are confronted with increasing caregiving
demands. More children are cared for at home, and the need for PPC of children is …

Objective This study investigates various kinds of knowing that European parents use when
caring for their children with congenital adrenal hyperplasia (CAH). Methods Semi …

Background The prevalence of complex chronic conditions (CCC), which cause serious
limitations and require specialized care, is increasing. The diagnosis of a CCC is a health …

The purpose of this article is to offer an improved understanding of how parents of children
with long-term disabilities are empowered to successfully take up their role as decision …

Background Mobile apps for mobile phones and tablet devices are widely used by children
and young people aged 0-18 years with long-term health conditions, such as chronic kidney …

Worldwide, the prevalence of chronic (or long-term) conditions in children and young people
from birth to 18 years (children) is increasing. Promoting competent and effective self …

Introduction Since its inception> 50 years ago, clean intermittent catheterization (CIC) has
become ubiquitous in managing lower urinary tract dysfunction in children. Emphasis has …

Background Learning for patients and their families within nurses' patient-and family-
education practice is an important part of person-and family-centred care. Patients and their …