Quality of life in individuals with spina bifida: a research update

KJ Sawin, MH Bellin - Developmental disabilities research …, 2010 - Wiley Online Library
Quality of life (QOL) is an important concept for individuals with chronic health conditions.
Measuring and supporting QOL in children, adolescents, and adults with spina bifida (SB) …

A review of the social, psychological, and economic burdens experienced by people with spina bifida and their caregivers

D Rofail, L Maguire, M Kissner, A Colligs… - Neurology and …, 2013 - Springer
Introduction Despite measures to reduce the incidence of neural tube defects (NTDs), the
rate of decline has not been as dramatic as expected. At least 300,000 newborns worldwide …

A longitudinal examination of health-related quality of life in children and adolescents with spina bifida

CB Murray, GN Holmbeck, AM Ros… - Journal of Pediatric …, 2015 - academic.oup.com
Objective The current study examined (1) spina bifida (SB) youths' health-related quality of
life (HRQOL) compared with nonclinical and chronic health condition (CHC) samples,(2) …

Efficacy and safety of mirabegron, a β3-adrenoceptor agonist, for treating neurogenic bladder in pediatric patients with spina bifida: a retrospective pilot study

JS Park, YS Lee, CN Lee, SH Kim, SW Kim… - World journal of …, 2019 - Springer
Purpose Antimuscarinics are the first pharmacological treatment option for neurogenic
bladder in children with spina bifida but side effects limit their use. Mirabegron, a new β-3 …

Parental satisfaction after open versus robot assisted laparoscopic pyeloplasty: results from modified Glasgow Children's Benefit Inventory Survey

DA Freilich, FJ Penna, CP Nelson, AB Retik… - The Journal of …, 2010 - auajournals.org
Purpose: Since its inception, robot assisted laparoscopic pyeloplasty has rapidly become
the minimally invasive surgical intervention of choice for treating ureteropelvic junction …

Quality of life assessment in spina bifida for children (QUALAS-C): development and validation of a novel health-related quality of life instrument

KM Szymanski, R Misseri, B Whittam, DY Yang… - Urology, 2016 - Elsevier
Objective To develop and validate a self-reported health-related QUAlity of Life Assessment
in Spina bifida for Children (QUALAS-C). Methods We drafted a 27-question pilot instrument …

Health related quality of life in patients with spina bifida: a prospective assessment before and after lower urinary tract reconstruction

AE MacNeily, S Jafari, H Scott, A Dalgetty… - The Journal of urology, 2009 - Elsevier
PURPOSE: In a previous retrospective cohort study we challenged the assumption that
lower urinary tract reconstruction improves health related quality of life in spina bifida cases …

Impact of spinal cord dysfunction and obesity on the health-related quality of life of children and adolescents

R Ted Abresch, DA McDonald, LM Widman… - The journal of spinal …, 2007 - Taylor & Francis
Objectives: The objectives of this study were:(1) to compare the health-related quality of life
(HRQOL) of children and adolescents with mobility impairments due to spinal cord injury …

Independence does not come with the method–treatment of neurogenic bowel dysfunction in children with myelomeningocele

P Wide, G Glad Mattsson, P Drott, S Mattsson - Acta paediatrica, 2014 - Wiley Online Library
Aim The aim was to evaluate and compare different bowel regimes with regard to
satisfaction, faecal incontinence and independence, and the relationship to quality of life …

Prospective study of the impact on quality of life of cystectomy with ileal conduit urinary diversion for neurogenic bladder dysfunction

J Guillotreau, E Castel‐Lacanal… - Neurourology and …, 2011 - Wiley Online Library
Objectives Neurogenic bladder dysfunction has a negative impact on the patient's quality of
life (QoL). Cystectomy with ileal conduit urinary diversion is a treatment option in patients in …