Cerebral palsy is a clinical descriptor covering a diverse group of permanent, non-
degenerative disorders of motor function. Around one-third of cases have now been shown …

Interdisciplinary fetal-neonatal neurology (FNN) training considers a woman's reproductive
and pregnancy health histories when assessing the “four great neonatal neurological …

A growing number of genes have been identified in individuals with cerebral palsy (CP);
however, many of these studies have poor compliance with the cerebral palsy clinical …

Collaborative data science requires standardized, harmonized, interoperable, and ethically
sourced data. Developing an agreed-upon set of elements requires capturing different …

Résumé Objectif Afin de faciliter les études multisites et la recherche clinique d'envergure
internationale, cette étude a pour but d'identifier des éléments de données communs …

Aim To facilitate multisite studies and international clinical research, this study aimed to
identify consensus‐based, standardized common data elements (CDEs) for arthrogryposis …

Objetivo Para facilitar los estudios multicéntricos y la investigación clínica internacional, este
estudio pretende identificar de forma consensuada los elementos de datos estandarizados …

Abstract REFERENCES 1 Wilson YA, Smithers-Sheedy H, Ostojic K, Waight E, Kruer MC,
Fahey MC; ICPGC Phenotype Working Group*, Baynam G, Gécz J, Badawi N, McIntyre S …

Abstract Cerebral palsy affects approximately 2-2.5 per 1000 live births, presenting a
complex array of motor and cognitive challenges to the affected individuals. Timely …