HCI addresses problems of interaction design: delivering novel designs, evaluating existing
designs, and understanding user needs for future designs. Qualitative methods have an …

Our objective was to develop a DNA biobank linked to phenotypic data derived from an
electronic medical record (EMR) system. An “opt‐out” model was implemented after …

Background: Leukoaraiosis (LA) is closely associated with aging, a major determinant of
clinical outcome after ischemic stroke. In this study we sought to identify whether LA …

Background The ownership status of individual-level health data affects the manner in which
it is used. In this paper we analyze two competing models of the ownership status of the data …

Abstract BioVU, the Vanderbilt DNA Databank, is one of few biobanks that qualifies as non‐
human subjects research as determined by the local IRB and the federal Office of Human …

Offering compelling practical and legal reasons why de-identification should be one of the
main approaches to protecting patients' privacy, this book outlines a proven, risk-based …

Twentieth-century bioethics celebrated individual autonomy but framed autonomy largely in
terms of an individual's power to make decisions and act alone. The most pressing …

Survey records are increasingly being linked to administrative databases to enhance the
survey data and increase research opportunities for data users. A necessary prerequisite to …

“The expression 'barbarians at the gate'was… used by the Romans to describe foreign
attacks against their empire.”“[It] is often used in contemporary English within a sarcastic, or …

Administrative records are increasingly being linked to survey records to highten the utility of
the survey data. Respondent consent is usually needed to perform exact record linkage; …