A standard set of outcome measures for the comprehensive appraisal of cleft care

AC Allori, T Kelley, JG Meara, A Albert… - The Cleft Palate …, 2017 - journals.sagepub.com
Care of the patient with cleft lip and/or palate remains complex. Prior attempts at aggregating
data to study the effectiveness of specific interventions or overall treatment protocols have …

Measuring patient-reported outcomes: key metrics in reconstructive surgery

SH Voineskos, JA Nelson, AF Klassen… - Annual Review of …, 2018 - annualreviews.org
Satisfaction and improved quality of life are among the most important outcomes for patients
undergoing plastic and reconstructive surgery for a variety of diseases and conditions …

The appropriateness and quality of patient-reported outcome measures (PROMs) in plastic surgery randomized controlled trials: A systematic review

PJ Kim, C Hircock, MNQ Huynh, L Gallo… - Journal of Plastic …, 2023 - Elsevier
Background Patient-reported outcome measures (PROMs) quantify patient perspectives to
measure outcomes that matter to patients. The aim of this study was to assess the reporting …

Evidence-based medicine: secondary correction of cleft lip nasal deformity

AC Allori, JB Mulliken - Plastic and reconstructive surgery, 2017 - journals.lww.com
Correction of cleft lip nasal deformity has been addressed in this Maintenance of
Certification/Continuing Medical Education series a number of times—a testament to the …

Psychosocial outcomes in children with cleft lip and/or palate: associations of demographic, cleft morphologic, and treatment-related variables

CE Crerand, AL Conrad, CC Bellucci… - The Cleft Palate …, 2024 - journals.sagepub.com
Objective To determine associations of demographic, morphologic, and treatment protocol
parameters with quality of life (QoL), appearance/speech satisfaction, and psychological …

Cognitive, behavioral and psychological functioning in children with metopic synostosis: a meta-analysis examining the impact of surgical status

AJ Osborn, RM Roberts, JL Mathias… - Child …, 2019 - Taylor & Francis
Neurodevelopmental delays are known to occur in children with metopic synostosis, but it is
presently unclear whether the cognitive, behavioral and psychological outcomes of children …

“I smile, but without showing my teeth”: The lived experience of cleft, lip, and palate in adults

AL Moi, H Gjengedal, K Lybak… - The Cleft Palate …, 2020 - journals.sagepub.com
Objective: To explore and describe the experience of growing up with unilateral cleft lip and
palate (CLP) in adults. Design: Face-to-face interviews. Giorgi's phenomenological method …

Patient-and 3D morphometry-based nose outcomes after skeletofacial reconstruction

R Denadai, PY Chou, HJ Seo, D Lonic, HH Lin… - Scientific Reports, 2020 - nature.com
Patient satisfaction with the shape and appearance of their nose after orthognathic surgery-
based skeletofacial reconstruction is an important, but often overlooked, outcome. We …

Health-related quality-of-life instruments for pediatric patients with diverse facial deformities: a systematic literature review

VJ Tapia, S Epstein, OS Tolmach… - Plastic and …, 2016 - journals.lww.com
Background: Treatment for patients with diverse craniofacial conditions is complex and long-
term. Craniofacial conditions profoundly influence health-related quality of life, and patient …

Role of patient and family engagement in quality improvement for pediatric surgery

SN Balbale, M Cho, MV Raval, SM Close - Seminars in Pediatric Surgery, 2023 - Elsevier
In recent decades, the role of quality improvement (QI) in pediatric surgery has grown
substantially. Patient and family engagement can help to maximize the impact of QI by …