Establishing the first community-centered Spina Bifida research agenda
S Struwe, J Thibadeau, MS Kelly… - Journal of Pediatric …, 2022 - Elsevier
Introduction Spina bifida (SB) is the most common permanently disabling congenital defect.
In 2016, the Spina Bifida Association (SBA) began updating the Guidelines for the Care of …
In 2016, the Spina Bifida Association (SBA) began updating the Guidelines for the Care of …
Health state utilities associated with invasive pneumococcal disease, pneumonia, and recurrent acute otitis media in young children
LS Matza, TA Howell, B Chun, L Hetherington… - Quality of Life …, 2025 - Springer
Purpose Cost-utility analyses examining the value of new vaccines for pneumococcal
disease will require health state utilities as inputs. Existing utilities for pneumococcal …
disease will require health state utilities as inputs. Existing utilities for pneumococcal …
Utility estimation for neurogenic bowel dysfunction in the general population
Background Neurogenic bowel dysfunction (NBD) affects over 80% of individuals with spina
bifida causing bowel incontinence and/or constipation. NBD is also associated with …
bifida causing bowel incontinence and/or constipation. NBD is also associated with …