A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders

S George, N Duran, K Norris - American journal of …, 2014 - ajph.aphapublications.org
To assess the experienced or perceived barriers and facilitators to health research
participation for major US racial/ethnic minority populations, we conducted a systematic …

Improving representation in clinical trials and research: building research equity for women and underrepresented groups

K Bibbins-Domingo, A Helman - 2022 - pubmed.ncbi.nlm.nih.gov
The United States has long made substantial investments in clinical research with the goal
of improving the health and well-being of our nation. There is no doubt that these …

Barriers to clinical research participation among African Americans

R Luebbert, A Perez - Journal of Transcultural Nursing, 2016 - journals.sagepub.com
Clinical research requires representation of racially and ethnically diverse participants to
accurately represent the general population. Overall life expectancy of African Americans is …

Exploring the engagement of racial and ethnic minorities in HIV treatment and vaccine clinical trials: a scoping review of literature and implications for future research

SB Bass, P D'Avanzo, M Alhajji, N Ventriglia… - AIDS patient care and …, 2020 - liebertpub.com
HIV disproportionately impacts US racial and ethnic minorities but they participate in
treatment and vaccine clinical trials at a lower rate than whites. To summarize barriers and …

Patient-centered practices for engaging transgender and gender diverse patients in clinical research studies

A Asquith, L Sava, AB Harris, AE Radix… - BMC medical research …, 2021 - Springer
Background The purpose of this formative study was to assess barriers and facilitators to
participation of transgender and gender diverse (TGD) patients in clinical research to solicit …

The influence of race and ethnicity on becoming a human subject: factors associated with participation in research

MA Garza, SC Quinn, Y Li, L Assini-Meytin… - Contemporary clinical …, 2017 - Elsevier
Inroduction The purpose of this study was to explore factors associated with willingness of
African Americans and Latinos to participate in biomedical and public health research and to …

[PDF][PDF] Eliciting patient perspective in patient-centered outcomes research: a meta narrative systematic review

JPD Garces, GJP Lopez, Z Wang… - A report prepared for …, 2012 - m.jimmypike.com
We suggest selecting representatives that are as similar as possible to the community or
population in which the study results are intended to be applied. This includes relevant …

Improving recruitment to pharmacological trials for illicit opioid use: findings from a qualitative focus group study

J Neale, CNE Tompkins, R McDonald, J Strang - Addiction, 2018 - Wiley Online Library
Aim To explore potential study participants' views on willingness to join clinical trials of
pharmacological interventions for illicit opioid use to inform and improve future recruitment …

Altruism motivates participation in a therapeutic HIV vaccine trial (CTN 173)

L Balfour, K Corace, GA Tasca, C Tremblay, JP Routy… - AIDS care, 2010 - Taylor & Francis
This is the first study examining motivation to participate in an HIV therapeutic vaccine trial of
Remune and ALVAC. Trial participants (N= 49) completed psychological measures at …

Factors influencing precision medicine knowledge and attitudes

R Chakravarthy, SC Stallings, M Williams, M Hollister… - PLoS …, 2020 - journals.plos.org
Precision medicine holds great promise for improving health and reducing health disparities
that can be most fully realized by advancing diversity and inclusion in research participants …