Who, what, where, and how? The state of family science in pediatric palliative care

EG Broden, JY Boyden, S Keller, R James… - Journal of Pain and …, 2024 - Elsevier
Context Families are vital providers and recipients of pediatric palliative care (PPC) services.
Understanding the scope and nature of evidence at the intersection of family science and …

“I Don't Get to Play With My Mum Anymore”: Experiences of Siblings Aged 8–12 of Children With Cancer: A Qualitative Study

J Davies, M O'Connor, GKB Halkett… - Journal of Pediatric …, 2024 - journals.sagepub.com
Background: Siblings of children with cancer have been shown to experience disruption in
multiple domains including family, school, and friendships. Existing literature on siblings' …

[HTML][HTML] Lived experiences with unmet supportive care needs in pediatric cancer: perspective of Chinese children and their parents

L Cheng, L Yu, H Huang, M Duan - International Journal of Nursing …, 2022 - Elsevier
Objective Unmet supportive care needs (SCNs) impact pediatric cancer patients and their
parents. This study aimed to explore the unmet SCNs from the perspective of Chinese …

Le vécu de la fratrie face au cancer pédiatrique: revue de la littérature systématique

V Kirakosyan - Annales Médico-psychologiques, revue psychiatrique, 2024 - Elsevier
Résumé Contexte et objectifs Le cancer pédiatrique a de nombreuses conséquences sur
l'enfant malade et sur sa famille. Si les conséquences sur l'enfant malade et ses parents ont …

“She's got cancer in her head, and I don't mean the zodiac sign”: The narratives shared by preschool educators working with children whose siblings have cancer

T Lir, Z Iris - Teaching and Teacher Education, 2025 - Elsevier
This study explores narratives in the discourse of preschool educators with children and
parents coping with a child whose sibling has cancer. Using a qualitative phenomenological …

Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations

V Rich, K Plummer, S Padhy, T Barratt, J Tran… - Psycho …, 2024 - Wiley Online Library
Background Retinoblastoma is a rare childhood ophthalmic cancer that requires frequent
eye examinations under anaesthesia and painful or distressing procedures. This can cause …

RISCO PSICOSSOCIAL E DISTRESS EM CUIDADORES DE CRIANÇAS COM CÂNCER

MG dos Santos Leal, AB Motta… - … e Saúde em …, 2024 - psicodebate.dpgpsifpm.com.br
Familiares experimentam situações desafiadoras no diagnóstico/tratamento do câncer
infantojuvenil. O adoecimento pode atingir o ajustamento familiar e a adesão aos cuidados …

Syskons erfarenheter av att leva med en svårt sjuk bror eller syster: En litteraturöversikt

E Ljudén, H Westblad - 2024 - diva-portal.org
Bakgrund: Den palliativa vården ska se till hela familjens behov av stöd. Lagen är tydlig vad
gäller barns rättigheter när en förälder är sjuk, men syskon som grupp blir ofta förbisedda …

Preliminary Qualitative Evaluation of the Emotion and Symptom-focused Engagement (EASE) Psychotherapeutic Intervention in Family Caregivers of Children with …

A Yu - 2024 - search.proquest.com
Acute leukemia (AL) is the most common childhood cancer which requires urgent, intensive
treatment, often causing significant traumatic stress in family caregivers (FCs). However …

Sykepleiernes ivaretakelse av søsken som pårørende på barneavdelinger-En spørreundersøkelse

M Eriksen, MS Lund - 2023 - oda.oslomet.no
Bakgrunn og hensikt: Sykepleiere på barneavdelinger har en plikt til å kartlegge søsken som
pårørende, ivareta deres behov for informasjon og gi oppfølging. Forskning og faglitteratur …