N Oravec, RC Arora, B Bjorklund, A Gregora… - The Journal of Thoracic …, 2023 - Elsevier
Objective (s) In light of the absence of patient and caregiver input in Enhanced Recovery After Surgery Cardiac Surgery guideline development, we conducted a scoping review to …
D Ayton, S Braaf, A Jones, H Teede… - Health & Social Care …, 2022 - Wiley Online Library
Partnering with consumers and patients and the community and public is a research and healthcare improvement imperative. Consumer and community involvement (CCI) requires …
A L'Espérance, N O'Brien, A Grégoire… - Research Involvement …, 2021 - Springer
Background Patient and public engagement (PPE) in research is growing internationally, and with it, the interest for its evaluation. In Canada, the Strategy for Patient-Oriented …
S Soklaridis, A de Bie, RB Cooper, K McCullough… - Academic …, 2020 - Springer
Objective Co-production involves service providers and service users collaborating to design and deliver services together and is gaining attention as a means to improve …
AM Chudyk, R Stoddard, TA Duhamel… - Health Research Policy …, 2024 - Springer
Background Patient engagement in research (also commonly referred to as patient or patient and public involvement in research) strives to transform health research wherein …
Family members can provide crucial support to individuals participating in clinical trials. In research on the “newest frontier” of Deep Brain Stimulation (DBS)—the use of DBS for …
J Easley, R Wassersug, S Matthias, M Tompson… - Current …, 2023 - mdpi.com
Background and purpose: Over the past decade, patient engagement (PE) has emerged as an important way to help improve the relevance, quality, and impact of health research …
MR Reid, AN Danguecan, I Colindres… - Lupus, 2023 - journals.sagepub.com
Systemic Lupus Erythematosus (SLE) is a complex chronic autoimmune disease disproportionally afflicting women and, in particular, American Indian/Alaska Native, Black …
LD Porter, KA Goodman, J Mailman… - American Society of …, 2023 - ascopubs.org
Inclusion of advocates as partners in research is now required by numerous international funding agencies. The role of advocates has expanded in recent years to include all areas of …