Data mining for health: staking out the ethical territory of digital phenotyping

N Martinez-Martin, TR Insel, P Dagum, HT Greely… - NPJ digital …, 2018 - nature.com
Digital phenotyping uses smartphone and wearable signals to measure cognition, mood,
and behavior. This promising new approach has been developed as an objective, passive …

The diffusion of virtual communities in health care: concepts and challenges

G Demiris - Patient education and counseling, 2006 - Elsevier
OBJECTIVE: This paper providers an overview and discussion of virtual communities in
health care. Furthermore, we aim to discuss in this context ethical, legal and technical …

Indicators of retention in remote digital health studies: a cross-study evaluation of 100,000 participants

A Pratap, EC Neto, P Snyder, C Stepnowsky… - NPJ digital …, 2020 - nature.com
Digital technologies such as smartphones are transforming the way scientists conduct
biomedical research. Several remotely conducted studies have recruited thousands of …

Introduction of shared electronic records: multi-site case study using diffusion of innovation theory

T Greenhalgh, K Stramer, T Bratan, E Byrne… - Bmj, 2008 - bmj.com
Objective To explore the introduction of a centrally stored, shared electronic patient record
(the summary care record (SCR)) in England and draw wider lessons about the …

Patients' attitudes towards sharing their health information

R Whiddett, I Hunter, J Engelbrecht, J Handy - International journal of …, 2006 - Elsevier
OBJECTIVES: The current policies of the governments of Australia and New Zealand
encourage the use of electronic information systems to exchange patient information …

[HTML][HTML] Patient consent management by a purpose-based consent model for electronic health record based on blockchain technology

D Tith, JS Lee, H Suzuki… - Healthcare …, 2020 - synapse.koreamed.org
Objectives Currently, patients' consent is essential to use their medical records for various
purposes; however, most people give their consent using paper forms and have no control …

A scoping review of neurodegenerative manifestations in explainable digital phenotyping

H Alfalahi, SB Dias, AH Khandoker… - npj Parkinson's …, 2023 - nature.com
Neurologists nowadays no longer view neurodegenerative diseases, like Parkinson's and
Alzheimer's disease, as single entities, but rather as a spectrum of multifaceted symptoms …

[HTML][HTML] Patients' attitudes toward electronic health information exchange: qualitative study

SR Simon, JS Evans, A Benjamin, D Delano… - Journal of medical …, 2009 - jmir.org
Background In many countries, there has been substantial progress in establishing the
electronic transmission of patients' health information between health care providers, but …

Inter-organizational future proof EHR systems: A review of the security and privacy related issues

H van der Linden, D Kalra, A Hasman… - International journal of …, 2009 - Elsevier
OBJECTIVES: Identification and analysis of privacy and security related issues that occur
when health information is exchanged between health care organizations. METHODS …

[HTML][HTML] Consumers' perceptions about and use of the internet for personal health records and health information exchange: analysis of the 2007 Health Information …

KY Wen, G Kreps, F Zhu, S Miller - Journal of medical Internet research, 2010 - jmir.org
Background: Personal health records (PHRs) and the sharing of health information through
health information exchange (HIE) have been advocated as key new components in the …