Cystic fibrosis and transition to adult medical care

LK Tuchman, LA Schwartz, GS Sawicki, MT Britto - Pediatrics, 2010 - publications.aap.org
Transition of young adults with cystic fibrosis (CF) from pediatric to adult medical care is an
important priority, because many patients are living well into their fourth decade, and by …

School nurses and care coordination for children with complex needs: An integrative review

R McClanahan, PC Weismuller - The Journal of School …, 2015 - journals.sagepub.com
Health care for students with chronic needs can be complex and specialized, resulting in
fragmentation, duplication, and inefficiencies. Students who miss school due to chronic …

Strangers headed to a strange land? A pilot study of using a transition coordinator to improve transfer from pediatric to adult services

RA Annunziato, MC Baisley, N Arrato, C Barton… - The Journal of …, 2013 - Elsevier
Objective To compare the impact of a transition coordinator on outcomes for pediatric liver
transplant recipients vs a historical comparison group. Study design To examine the utility of …

Transitions from child to adult health care for young people with intellectual disabilities: a systematic review

M Brown, J Macarthur, A Higgins… - Journal of advanced …, 2019 - Wiley Online Library
Aims To examine the experiences of health transitions for young people with intellectual
disabilities and their carers and identify the implications for nursing practice. Design A …

Impact of a transition program with navigator on loss to follow‐up, medication adherence, and appointment attendance in hemoglobinopathies

B Allemang, K Allan, C Johnson… - Pediatric Blood & …, 2019 - Wiley Online Library
Background Transition from pediatric to adult care is a period of high risk for loss to follow‐
up, morbidity, and mortality in adolescents and young adults (AYA) with …

Practice-based care coordination: a medical home essential

JW McAllister, E Presler, WC Cooley - Pediatrics, 2007 - publications.aap.org
Families who raise children and youth with special health care needs deserve a medical
home. They expect a team approach to health care, with coordination across multiple …

Transition to adult services

H Gleeson, G Turner - Archives of Disease in Childhood-Education and …, 2012 - ep.bmj.com
The lack of focus on young people as a group with particular healthcare needs in medical
training and the health service underpins the difficulty that we have experienced as a …

Transition from child to adult health services: a qualitative study of the views and experiences of families of young adults with intellectual disabilities

M Brown, A Higgins, J MacArthur - Journal of Clinical Nursing, 2020 - Wiley Online Library
Aims and objectives To explore the experiences of the families of young adults with
intellectual disabilities at the point of transition from child to adult health services …

Study protocol: longitudinal study of the transition of young people with complex health needs from child to adult health services

AF Colver, H Merrick, M Deverill, A Le Couteur, J Parr… - BMC Public Health, 2013 - Springer
Background Young people with complex health needs have impairments that can limit their
ability to carry out day-to-day activities. As well as coping with other developmental …

[PDF][PDF] Nonadherence and the transition to adulthood

EM Fredericks - Liver transplantation, 2009 - Wiley Online Library
Abstract Key Points 1. Rates of nonadherence among pediatric transplant recipients are as
high as 50% to 65%, and this places adolescent transplant recipients at increased risk. 2 …