Patients' and caregivers' perspectives on access to kidney replacement therapy in rural communities: systematic review of qualitative studies

NJ Scholes-Robertson, M Howell, T Gutman… - BMJ open, 2020 - bmjopen.bmj.com
Objective Patients with chronic kidney disease (CKD) requiring kidney replacement therapy
(KRT) in rural communities encounter many barriers in accessing equitable care and have …

Patient needs and priorities for patient navigator programmes in chronic kidney disease: a workshop report

C Guha, P Lopez-Vargas, A Ju, T Gutman… - BMJ open, 2020 - bmjopen.bmj.com
Background and objective Patients with early chronic kidney disease (CKD) face challenges
in accessing healthcare, including delays in diagnosis, fragmented speciality care and lack …

Patient and parent perspectives on transition from paediatric to adult healthcare in rheumatic diseases: an interview study

I Jiang, G Major, D Singh-Grewal, C Teng, A Kelly… - BMJ open, 2021 - bmjopen.bmj.com
Objectives To describe the experiences, priorities, and needs of patients with rheumatic
disease and their parents during transition from paediatric to adult healthcare. Setting Face …

Perspectives of a proposed patient navigator programme for people with chronic kidney disease in rural communities: report from national workshops

N Scholes‐Robertson, M Howell, SA Carter… - …, 2022 - Wiley Online Library
Aims People who live in rural areas have reduced access to appropriate and timely
healthcare, leading to poorer health outcomes than their metropolitan‐based counterparts …

[HTML][HTML] Socioeconomic position and health among children and adolescents with chronic kidney disease across the life-course

A van Zwieten, S Kim, A Dominello, C Guha… - Kidney International …, 2024 - Elsevier
Children and adolescents in families of lower socioeconomic position (SEP) experience an
inequitable burden of reduced access to healthcare and poorer health. For children living …

[PDF][PDF] Strategies to build evidence for kinship navigator programs under the Family First Act

B Rushovich, A McKlindon, S Vandivere - Child Trends, 2021 - cms.childtrends.org
The 2018 Family First Prevention Services Act (Family First Act) provides funding for kinship
navigator programs that demonstrate evidence of effectiveness. Many agencies believe their …

Baseline characteristics of participants in the NAVKIDS2 trial: a patient navigator program in children with chronic kidney disease

C Guha, R Khalid, A Van Zwieten, A Francis… - Pediatric …, 2023 - Springer
Background Children with chronic kidney disease (CKD) require multidisciplinary care to
meet their complex healthcare needs. Patient navigators are trained non-medical personnel …

Longitudinal associations between socioeconomic position and overall health of children with chronic kidney disease and their carers

R Shingde, C Guha, A van Zwieten, S Kim, A Walker… - Pediatric …, 2024 - Springer
Background Disadvantaged socioeconomic position (SEP) is an important predictor of poor
health in children with chronic kidney disease (CKD). The time course over which SEP …

NAVKIDS2 trial: a multi-centre, waitlisted randomised controlled trial of a patient navigator intervention in children with chronic kidney disease — statistical analysis …

A van Zwieten, EG Ryan, P Caldwell, K Howard… - Trials, 2022 - Springer
Background This update summarises key changes made to the protocol since the
publication of the original protocol for the NAVKIDS2 trial of patient navigators for children …

[HTML][HTML] Perspectives of caregivers on access to healthcare for children with chronic kidney disease

C Guha, R Khalid, KA Mallitt, A van Zwieten… - Kidney International …, 2024 - Elsevier
Background Inequitable access to health care based upon demographic factors such as
ethnicity, socioeconomic status (SES) and geographical location has been consistently …