A metasynthesis: uncovering what is known about the experiences of families with children who have life-limiting and life-threatening illnesses

JMG Bally, NR Smith, L Holtslander, V Duncan… - Journal of Pediatric …, 2018 - Elsevier
Purpose To conduct a metasynthesis of qualitative research exploring parents' psychosocial
experiences during complex and traumatic life transitions related to caring for a child with a …

Towards a new understanding of uncertainty in medical education

C Lee, K Hall, M Anakin… - Journal of Evaluation in …, 2021 - Wiley Online Library
Rationale, aims, and objectives Uncertainty is a complex and constant phenomenon in
clinical practice. How medical students recognize and respond to uncertainty impacts on …

Factors affecting pathways to care for children and adolescents with complex vascular malformations: parental perspectives

BA Sisk, A Kerr, KA King - Orphanet Journal of Rare Diseases, 2022 - Springer
Abstract Background Complex vascular malformations (VMs) are rare disorders that can
cause pain, coagulopathy, disfigurement, asymmetric growth, and disability. Patients with …

Uncertainty and perinatal post‐traumatic stress disorder in the neonatal intensive care unit

KJ Malin, TS Johnson, RL Brown… - Research in nursing …, 2022 - Wiley Online Library
Parents of infants in the neonatal intensive care unit (NICU) are at increased risk of
developing perinatal post‐traumatic stress disorder (PPTSD), a mental health condition …

Unstructured play for anxiety in pediatric inpatient care

N Al‐Yateem, RC Rossiter - Journal for Specialists in Pediatric …, 2017 - Wiley Online Library
Purpose The purpose of this study was to examine the effects of unstructured play activities
on the anxiety levels of hospitalized children. Methods A nonequivalent control group pretest …

Living with uncertainty and hope: A qualitative study exploring parents' experiences of living with childhood multiple sclerosis

D Hinton, S Kirk - Chronic illness, 2017 - journals.sagepub.com
Background There is growing recognition that multiple sclerosis is a possible, albeit
uncommon, diagnosis in childhood. However, very little is known about the experiences of …

Burdens of disease and caregiver burden in complex vascular malformations

R Kalbfell, W Wang, S Fishman… - Pediatric Blood & …, 2023 - Wiley Online Library
Abstract Introduction Vascular malformations (VMs) are rare diseases that affect a wide age
range of patients and require complicated care and management. The strain these …

Communication with parents and young adult patients affected by complex vascular malformations

B Sisk, C Bereitschaft, A Kerr - Pediatric Blood & Cancer, 2023 - Wiley Online Library
Abstract Background Vascular malformations (VMs) are rare disorders that can cause pain,
coagulopathy, disfigurement, asymmetric growth, and disability. Families affected by …

Factors associated with parental adaptation to children with an undiagnosed medical condition

T Yanes, L Humphreys, A McInerney-Leo… - Journal of genetic …, 2017 - Springer
Little is known about the adaptive process and experiences of parents raising a child with an
undiagnosed medical condition. The present study aims to assess how uncertainty, hope …

[图书][B] Dealing with change through information sculpting

I Ruthven - 2022 - emerald.com
Abdelrahman, OH (2016). Use of library technology and services by the visually impaired
and the blind in the University of Khartoum, Sudan. DESIDOC Journal of Library & …