Ethical, social, and cultural issues related to clinical genetic testing and counseling in low-and middle-income countries: a systematic review

A Zhong, B Darren, B Loiseau, LQB He, T Chang… - Genetics in …, 2021 - nature.com
Purpose We performed a systematic review of the ethical, social, and cultural issues
associated with delivery of genetic services in low-and middle-income countries (LMICs) …

Quality of life in thalassemia

P Telfer, G Constantinidou, P Andreou… - Annals of the New …, 2005 - Wiley Online Library
Morbidity and mortality related to thalassemia have been reduced significantly with modern
medical treatment, and quality of life (QOL) should now be considered an important index of …

Psychological problems and quality of life in children with thalassemia

D Shaligram, SC Girimaji, SK Chaturvedi - The Indian Journal of Pediatrics, 2007 - Springer
Objective The study is aimed to assess psychological problems and quality of life (QOL) in
children with thalassemia. Methods Thirty-nine children (8–16 yr) with transfusion …

Health related quality of life in Malaysian children with thalassaemia

A Ismail, MJ Campbell, HM Ibrahim… - Health and Quality of life …, 2006 - Springer
Abstract Background Health Related Quality of Life (HRQoL) studies on children with
chronic illness such as thalassaemia are limited. We conducted the first study to investigate …

[PDF][PDF] Promoção da saúde, epidemiologia social e capital social: inter-relações e perspectivas para a saúde pública

EM Souza, E Grundy - Cadernos de saúde Pública, 2004 - SciELO Public Health
A idéia de promover saúde antecede o uso explícito do termo. No entanto, a incorporação
dessa idéia e da prática no campo da saúde pública foi influenciado especialmente pela …

[HTML][HTML] Anxiety, depression and quality of life in patients with beta thalassemia major and their caregivers

E Yengil, C Acipayam, MH Kokacya… - … journal of clinical and …, 2014 - ncbi.nlm.nih.gov
Mental health and health related quality of life is commonly affected in patients with chronic
problems and their caregivers. In the present study, it was aimed to assess depression and …

Emotional impact in β-thalassaemia major children following cognitive-behavioural family therapy and quality of life of caregiving mothers

L Mazzone, L Battaglia, F Andreozzi… - Clinical practice and …, 2009 - Springer
Abstract Background Cognitive-Behavioural Family Therapy (CBFT) can be an effective
psychological approach for children with β-thalassaemia major, increasing compliance to …

Health-related quality of life in pediatric and adolescent patients with transfusion-dependent ß-thalassemia in upper Egypt (single center study)

GLA Hakeem, SO Mousa, AN Moustafa… - Health and quality of life …, 2018 - Springer
Background Thalassemia is a major health problem that disturbs the lifestyle of the affected
patient. The aim of this work is to detect the impact of thalassemia on the quality of life …

Depression and Thalassemia in children, adolescents and adults

J Koutelekos, N Haliasos - Health science journal, 2013 - search.proquest.com
Thalassaemia consists one of the most common chronic and genetic hematological
disorder, globally. Moreover, is a serious life-limiting and potentially life-threatening disease …

[HTML][HTML] Evaluation of mental health and related factors among patients with beta-thalassemia major in South East of Iran

M Naderi, M reza Hormozi, M Ashrafi… - Iranian journal of …, 2012 - ncbi.nlm.nih.gov
Objective Beta-thalassemia major (β-TM) is a chronic, genetic and hematological disorder.
Children and teenagers with chronic physical illnesses exemplified by thalassemia are …