The recommendations listed in this document are, whenever possible, evidence-based.
Unlike other ACC/AHA practice guidelines, there is not a large body of peer-reviewed …

Background Parents of children with critical congenital heart defects (PCCHD s) may be at
high risk for mental health morbidity; however, the literature is not well characterized. Given …

Background—The goal of this statement was to review the available literature on
surveillance, screening, evaluation, and management strategies and put forward a scientific …

Although the primary responsibility for discussion of sexuality and reproductive issues
should fall to the primary care physician, the cardiologist may have more frequent visits with …

OBJECTIVES. The aims of this study were to evaluate and compare the parent-reported and
self-reported quality of life of children who have cardiovascular disease with the healthy …

The present study used a Double-ABCX model to explore parental stress in 48 British
families with children with developmental disabilities and behaviour problems in relation to …

The importance of partnerships between professionals and the parents of children with
special needs/disability is well established in childcare legislation. But is it reflected in …

In 2012, the American Heart Association and the American Academy of Paediatrics released
a scientific statement with guidelines for the evaluation and management of the …

This study examined the roles of enacted support and generic relationship satisfaction in
accounting for perceived support's relation to low emotional distress in a sample of mothers …

Objective: To determine the feasibility, reliability and validity of the pediatric quality of life
inventory (PedsQL™) in children with heart disease. Participants and setting: The study …